peter57
Distinguished member
- Joined
- Jun 21, 2009
- Messages
- 434
- Reason
- DX UMND/PLS
- Diagnosis
- 10/2008
- Country
- AUS
- State
- S.A.
- City
- Millicent
Hi all,
Well next week I am going to have some tests done to see if the Baclofen Pump will be suitable for me.
I am currently on 75 mg of Baclofen (3 x 25) a day and they dont seem to be doing much.
My strength has stopped declining (I think so any way) and I am still walking although with a walker for balance.
My Neuro suggested i might benifit from having one.
Now the interesting part.
The hospital where i am going to has not done a MND patient with a pump before, they do other people though.
So to see if i will have a benifit from it i will be in hospital for 5 or so days, doing the gradual increase in amount test etc.
(i guess another round of being a guinea pig):lol:
I know that there are several others on the forum who have had a pump eg Rayboo alias Raymond B., amatopps etc and have read the threads that they have posted re the pump and it will be interesting to see how the tests go with me.
I will keep every one informed
cheers
Peter
Well next week I am going to have some tests done to see if the Baclofen Pump will be suitable for me.
I am currently on 75 mg of Baclofen (3 x 25) a day and they dont seem to be doing much.
My strength has stopped declining (I think so any way) and I am still walking although with a walker for balance.
My Neuro suggested i might benifit from having one.
Now the interesting part.
The hospital where i am going to has not done a MND patient with a pump before, they do other people though.
So to see if i will have a benifit from it i will be in hospital for 5 or so days, doing the gradual increase in amount test etc.
(i guess another round of being a guinea pig):lol:
I know that there are several others on the forum who have had a pump eg Rayboo alias Raymond B., amatopps etc and have read the threads that they have posted re the pump and it will be interesting to see how the tests go with me.
I will keep every one informed
cheers
Peter