Old 04-05-2010, 11:21 AM #1 (permalink)
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City: Scottsbluff
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Interest: I have been diagnosed with UMND/PLS.
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Join Date: 2010
City: Scottsbluff
State: NE
Country: US
Diagnosed: 09/2009
Interest: I have been diagnosed with UMND/PLS.
Posts: 47
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Default New diagnosis and needing more info.

I was just diagnosed with PLS in 9/2009 and was trying to get information from the internet about it to see what I'm up against and what I need to do to FIGHT the inevitable. The problem is . . . all of the sites I've found, until now, tell me the FACTS and not the personal problems that people have had to face.
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Old 04-05-2010, 02:46 PM #2 (permalink)
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Default Re: New diagnosis and needing more info.

hi valrunk.
welcome to the forum
unfortunatly there is only basic info on pls unless you delve into the neurological sites for research.
the best place to get advice with living with pls is right here on forums like this.
we all understand the daily troubles living with this desease.
any questions you have please ask

if you look at the sticky post at the top of the pls forum you will see the spf page there.
they post on the web page a seasonal synapse ,this can give helpfull advice along with fund raising events ect.
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