Oh, thank you so much to everyone who replied. O.M.G. we are not alone after all! There are even former PG'ers on the site? Wow. This is a good feeling, to not be completely alone. We do have alot on our plates. The docs just shake their heads. For now we both just try to accept it, and let go. We'll see how that works in the future eh?
As for the tie breaker question, which is worse, PLS or MS? I would have to say PLS, so far, is worse. Mainly because there is no treatment and my husband's balance problems are worse than mine. It is hard to stay positive, but at least we can plan? At least that's what people keep telling us. I guess they are right, its better than something suddenly killing us. Thankfully we are still alive and have each other and some quality in our lives ;-)
I went to a lecture today at the university here and it was on ALS, Parkinson's, and Dementia. The researcher's name is Sandra A. Banack. She is from California State, Berkley. It was interesting because she and her colleagues are basically saying that blue/green algae in our lakes and oceans, as well as some other amino acids are causing ALS, Parkinson's and Dementia, which she and her colleagues consider a cluster of diseases affected by this protein. I forgot my notes at work, but will post some info later. Is anyone in the U.S. or anywhere else doing the stem cell replacement therapies with neruological disroders like they are in Israel, Turkey, Asia, etc?
On the upside, this Dr. Banack said people with ALS are known to be some of the nicest people on the planet. Didn't surprise me as my husband would fall into that category and he has PLS. Just thought I'd share that for those of you having a bad day.
S&P
