Mandyintn123
Member
- Joined
- Mar 26, 2015
- Messages
- 16
- Reason
- CALS
- Diagnosis
- 02/2015
- Country
- US
- State
- TN
- City
- CLeveland
a little back story my mom is 58 yrs old .. diagnosed bulbar March 4th. she has gone from 155 lbs in October to barely 108 . We are a part of a brand new ALS clinic here in chattanooga which i am not sure we are getting the best information or care since they are so new there are alot of kinks to work out .. she is scheduled for a peg on april 6th. however they do not have a nutritionist on staff nor can they find one apparently. said they will send us home and have home health come out and teach us all about the peg.. honestly i am terrified of that ..which the experience with home health with my grandmother they are less than diligent.. any advice i am grateful for