- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
I feel the need to shout a great big " thank you Rose". This morning Steve woke to find blood around his stoma. He admitted to me that he has had issues with blood and yellow stuff around it. I was very uneasy, as I also found a bunch of scrapes and cuts on him.
He has had a couple of falls and since I was at work...he thought he could get away with not telling me. Anyways, I became quite concerned about his PEG and was totally thinking it may be infected.
The peg tube surgeon told Steve that if he had any issues he should call his Neuro, not him. Very unhelpful doctor. He never even made sure we knew what to do or how to take care of the tube.
I decided to do a search, on the forum, under the feeding tube section and came across 'Rose's Tube Chic" link. I read the info to Steve. We have figured out what we think is the problem. We taped the stoma and tubes with medical tape so that it wouldn't move so much. We have been doing everything else correctly.
Rose, I have to say I am totally amazed by your web site. You are beautiful, inside and out. This forum and everyone on it have saved us...so many times. I hope one day to pass it forward.
He has had a couple of falls and since I was at work...he thought he could get away with not telling me. Anyways, I became quite concerned about his PEG and was totally thinking it may be infected.
The peg tube surgeon told Steve that if he had any issues he should call his Neuro, not him. Very unhelpful doctor. He never even made sure we knew what to do or how to take care of the tube.
I decided to do a search, on the forum, under the feeding tube section and came across 'Rose's Tube Chic" link. I read the info to Steve. We have figured out what we think is the problem. We taped the stoma and tubes with medical tape so that it wouldn't move so much. We have been doing everything else correctly.
Rose, I have to say I am totally amazed by your web site. You are beautiful, inside and out. This forum and everyone on it have saved us...so many times. I hope one day to pass it forward.