for those who asked SPS plus ive lost the use of my left side 3x. Ischemic strokes are thought to be the cause and each time my cns seems to freak out. I had tachycardia the first time, the third time i had bradycardia and when i would fall asleep the code team would keep rushing in because my heart rate would drop so low they thought i was coding. I would startld and it would go up. The sps is more recent and is widespread. Without the baclofen anc valium the muscles in my chest amd diaphram can expand enough to let me breathe properly and i have esopogeal spasms to the point where my saliva can't be swallowed much less the pills i need to make me possibly functional. I have referras to multie places but things run slow and around here you wait months to see specialist so i was trying to research and go in preared. Many of the interventions for what im looking at are used in als such as feeding tubes, bipap etc. there are few or no places or communities that would face the same rounds of testing, medical equpitmen medications etc as what i am facing. At this point im waiting on the pulmonologist, gi, sleep study, just had emg and eeg and have another month anx a half to get into cleveland clinic movement disorder group despite being interally referred.