Old 09-11-2014, 04:25 PM #1 (permalink)
Member
 
Join Date: 2014
City: Lafayette
State: Ca
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 166
Schmidhogan is on a distinguished road
Schmidhogan Schmidhogan is offline
Member
Join Date: 2014
City: Lafayette
State: Ca
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 166
Schmidhogan is on a distinguished road
Default Peg tube consultation

Just got back from my peg tube consultation. Scheduled for 2 weeks from Monday. Everything said was as I expected from all my reading here except the doctor said he doesn't suture the stomach to the abdominal wall. The two are held together by the bumpers and shortly grow together. This was news to me. I recall Gooseberry saying there were stitches to remove. Any comment? The doc said I could spend the night in the hospital if I wanted but didn't seem to think this was necessary. Hope I don't end up like poor Neil. What a nightmare he has gone through. Alex
Schmidhogan is offline  
Old 09-11-2014, 04:46 PM #2 (permalink)
dalvin's Avatar
Senior Member
 
Join Date: 2013
City: richmond
State: va
Country: US
Interest: I have been diagnosed with ALS.
Posts: 954
dalvin is on a distinguished road
dalvin dalvin is offline
Senior Member
dalvin's Avatar
Join Date: 2013
City: richmond
State: va
Country: US
Interest: I have been diagnosed with ALS.
Posts: 954
dalvin is on a distinguished road
Default Re: Peg tube consultation

Mine didn't have sutures. Was a little surprised when I read about others getting them. You do have to watch that the tube doesn't slide loose on the outer bumper but if it does you just gently pull the tube back out to the mark it's supposed to be at
dalvin is offline  
Old 09-11-2014, 04:48 PM #3 (permalink)
Senior Member
 
Join Date: 2013
City: Fort Wayne
State: Indiana
Country: US
Diagnosed: 11/1985
Interest: I have been diagnosed with ALS.
Posts: 620
Diane H is a glorious beacon of lightDiane H is a glorious beacon of lightDiane H is a glorious beacon of lightDiane H is a glorious beacon of lightDiane H is a glorious beacon of lightDiane H is a glorious beacon of light
Diane H Diane H is offline
Senior Member
Join Date: 2013
City: Fort Wayne
State: Indiana
Country: US
Diagnosed: 11/1985
Interest: I have been diagnosed with ALS.
Posts: 620
Diane H is a glorious beacon of lightDiane H is a glorious beacon of lightDiane H is a glorious beacon of lightDiane H is a glorious beacon of lightDiane H is a glorious beacon of lightDiane H is a glorious beacon of light
Default Re: Peg tube consultation

The stitches were most likely a couple of skin sutures to snug the stoma around the tube or possibly outside bumper to skin. If you would like more info on the whole feeding tube experience, go to my section on feeding tubes. I bet you will find some stuff your doctor never mentioned and hopefully the info will make the procedure and adjustment to the tube go easily. Feeding Tubes

DianeH, feeding tube and vent for 10 years.
Diane H is offline  
Old 09-11-2014, 05:22 PM #4 (permalink)
Member
 
Join Date: 2014
City: Lafayette
State: Ca
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 166
Schmidhogan is on a distinguished road
Schmidhogan Schmidhogan is offline
Member
Join Date: 2014
City: Lafayette
State: Ca
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 166
Schmidhogan is on a distinguished road
Default Re: Peg tube consultation

Dalvin: hope my tube is as easy as yours. You seem to be able to dump anything down it and it's OK. I've read a lot about tubes but I'm sure it won't all pull together until I have to deal with my first clog, etc. What a drag. But I'm looking forward to not having to force food into me and ceasing to lose weight. Does your insurance pay for your formula? Alex
Schmidhogan is offline  
Old 09-11-2014, 05:36 PM #5 (permalink)
dalvin's Avatar
Senior Member
 
Join Date: 2013
City: richmond
State: va
Country: US
Interest: I have been diagnosed with ALS.
Posts: 954
dalvin is on a distinguished road
dalvin dalvin is offline
Senior Member
dalvin's Avatar
Join Date: 2013
City: richmond
State: va
Country: US
Interest: I have been diagnosed with ALS.
Posts: 954
dalvin is on a distinguished road
Default Re: Peg tube consultation

It payed for it minus any deductible or copay. The va provides it now.
They will also pay for the syringes, one per day. You should get a months supply at a time. As the rate of speed, take your time till you figure out what works best for you. Warming it slightly will help. Just not too warm, I do 20 seconds in the microwave for a cup. I spread the cans out through the day so I'm not trying to put too much in at a time.
Never put anything cool or cold through it. We all like to drink cold water or sodas or whatever but it has time to warm up before hitting your stomach. If you do that through the tube, it's still cold and will 'shock' your stomach cause nausea or worse
dalvin is offline  
Old 09-11-2014, 05:40 PM #6 (permalink)
dalvin's Avatar
Senior Member
 
Join Date: 2013
City: richmond
State: va
Country: US
Interest: I have been diagnosed with ALS.
Posts: 954
dalvin is on a distinguished road
dalvin dalvin is offline
Senior Member
dalvin's Avatar
Join Date: 2013
City: richmond
State: va
Country: US
Interest: I have been diagnosed with ALS.
Posts: 954
dalvin is on a distinguished road
Default Re: Peg tube consultation

Clogs in the length of the tube are pretty easy to deal with. Just pinch the tube at the clog between two fingers and roll them, the clog breaks up and can be flushed on through. Try to time your meds with a feeding. Do them first then the formula followed by at least 180 ml of water
dalvin is offline  
Old 09-11-2014, 05:49 PM #7 (permalink)
Member
 
Join Date: 2014
City: Lafayette
State: Ca
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 166
Schmidhogan is on a distinguished road
Schmidhogan Schmidhogan is offline
Member
Join Date: 2014
City: Lafayette
State: Ca
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 166
Schmidhogan is on a distinguished road
Default Re: Peg tube consultation

Thanks Dianne and Dalvin. I'll reread Dianne's section on peg tubes. I have clinic tomorrow so I get the guidance of my dietician re correct formula. Intend to be well prepared in two weeks. Alex
Schmidhogan is offline  
Old 09-11-2014, 07:08 PM #8 (permalink)
gooseberry's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
gooseberry gooseberry is offline
Extremely Helpful Member
gooseberry's Avatar
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
Default Re: Peg tube consultation

Alex, Don't sweat it! After yesterday, when my husband got #2, all is good. The interventional radiology nurse told us that the sutures that the nurse tried to remove, didn't have to be removed. They were on 3 little buttons outside the circular disk that was on the peg tube. Not sure why they were there in the first place but they had been secured with dissolving stitches. He got a button tube yesterday. They had him stay overnight the first time because of his fvc numbers and how the anesthesia can depress your breathing. Yesterday he was in and out in 3 hours because the just relaxed him and swapped things out. It will be okay.
gooseberry is offline  
Old 09-11-2014, 09:01 PM #9 (permalink)
Member
 
Join Date: 2014
City: Lafayette
State: Ca
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 166
Schmidhogan is on a distinguished road
Schmidhogan Schmidhogan is offline
Member
Join Date: 2014
City: Lafayette
State: Ca
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 166
Schmidhogan is on a distinguished road
Default Re: Peg tube consultation

Thanks for the pep talk. I expect it will work out fine. It's routine, isn't it. It will be nice to not have to eat if I don't want to and pills will lose their dread. Can't say I'm looking forward to it but c'est la vie.
Schmidhogan is offline  
Closed Thread

Tags
abdominal, back, hope, night, peg, reading, wanted


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Cost for home modification consultation shannanichos General Discussion About ALS/MND 4 03-23-2014 03:36 PM
Peg tube Janie H General Discussion About PEG's 9 02-03-2014 08:32 PM
Now on G Tube 90% Magpuff General Discussion About PEG's 5 08-13-2012 08:32 PM
peg tube myrwin General Discussion About PEG's 6 08-16-2011 01:54 PM
Neurology consultation Jodie General Discussion About ALS/MND 5 11-12-2010 08:51 AM
Peg tube ...what now? handinhand General Discussion About PEG's 4 07-29-2010 02:53 PM
Consultation at Hopkins marywest45 General Discussion About ALS/MND 7 09-03-2009 08:06 PM
Peg Tube Jeannie Care of a PEG Tube 10 08-27-2008 02:06 PM
To tube, or not to tube (feeding tube pros and cons) speechie1 Care of a PEG Tube 75 04-06-2008 11:22 PM
Feeding tube or no feeding tube...that is the question MarciaA Care of a PEG Tube 32 09-18-2007 03:03 PM


All times are GMT -5. The time now is 06:13 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016