Cranial and fluctuating symptoms in MMN?

[Searcher]

I've read that it is rare for MMN to affect cranial nerves (swallowing, speech, etc.) but wonder if any who have this diagnosis have speech or swallowing problems, including any tongue atrophy?

Also, can MMN symptoms fluctuate over years or are they generally progressive, even if only slowly so (compared to ALS)?

Thanks,

Searcher

[Peg B]

Hi Searcher,

Everything I have read sounds like MMN follows a slow progression but not a fluctuating pattern. However, there are certainly good days and bad days. IVIG treatments certainly make a difference, as well as the level of activity. For instance I can go strong for a day or two if there is something special going on, but then I "crash" and will basically sleep for two days. You are correct about the effect on "cranial nerves (swallowing, speech, etc.)" I hope this helps. Best Wishes, Peg

[Searcher]

Peg,

Thanks.

By "correct" do you mean that it is rare for cranial nerves to be involved in MMN? Having some speech and swallowing problems, so this is why I ask.

Searcher

[Peg B]

That is my understanding. Best Wishes, Peg