ALS and cognitive ability

[paulw]

My wife was diagnosed in 9/07 with Bulbar onset. She has progressed to the point where she has very little motor abilities left. Can't speak either. We communicate by her moving her eyes away when the answer is yes. Lately she does not seem to understand even the simplest questions. Are you hot, are you cold. Is that common with late term ALS patients?

I get so frustrated that I just want to scream. We should have the dynavox eyegaze next week. If that does't help with our communications, I don't know how we will get through this.

Any advice, Please!

[joelc]

Here is some information that might be helpful.
Cognitive Impairment

I am sorry you and your wife are going through this!

[Ellamay]

Paul,
Check out my pictures. I found on the internet information about laser glasses and a word board. It has made a world of difference to Tony,s ability to communicate. Check out this link. it helped me find the info I needed to make my own laser pointer.

YouTube- Laser Pointer for Low Tech AAC w/ Large Communication Board

[Ellamay]

I hear your frustration and I had to show you what is working for Tony. Please check out my pictures