joelc
Moderator emeritus
- Joined
- Jul 15, 2006
- Messages
- 2,835
- Reason
- PALS
- Diagnosis
- 09/2005
- Country
- CA
- State
- BC
- City
- Abbotsford
Today was one of those "Reality” (slap you in the face) days. They always come when you let your guard down and don't see it coming.
I have not had enough nerve to venture out for 3 months now because my loaner powerchair, which I am very thankful for, has had an electrical problem that they can't seem to fix. So I have only been off our property twice to go to support group meetings.
Anyway, I had a surprise visit today, they brought out a new, old, power wheelchair. I was very excited as now I can venture out again. Right? Wrong!
I am not going to expand on what transpired but suffice it to say today turned out to be the lowest day I have ever had. It did not have any of the features my other chair had.
Why can't they at least make them comfortable? With the price they get for them is that too much to ask?
There are some major other issues as well. I really wish I was in a position to influence purchasing decisions. These chairs are ordered by people who have no clue about the needs of someone with ALS. We have no meat on our bones so seats have to be comfortable. Is that too much to ask? I have only been in the chair for 5 hours and am almost in tears because of the pain.
I wish I could build my own and I would use a bucket seat out of a quality automobile. They are comfortable and a fraction of the price these wheelchair people charge for their junk.
I want them to fix and return my old chair! I don't care it is 6 years old, it was a great chair!
Enough of my rant.
I have not had enough nerve to venture out for 3 months now because my loaner powerchair, which I am very thankful for, has had an electrical problem that they can't seem to fix. So I have only been off our property twice to go to support group meetings.
Anyway, I had a surprise visit today, they brought out a new, old, power wheelchair. I was very excited as now I can venture out again. Right? Wrong!
I am not going to expand on what transpired but suffice it to say today turned out to be the lowest day I have ever had. It did not have any of the features my other chair had.
Why can't they at least make them comfortable? With the price they get for them is that too much to ask?
There are some major other issues as well. I really wish I was in a position to influence purchasing decisions. These chairs are ordered by people who have no clue about the needs of someone with ALS. We have no meat on our bones so seats have to be comfortable. Is that too much to ask? I have only been in the chair for 5 hours and am almost in tears because of the pain.
I wish I could build my own and I would use a bucket seat out of a quality automobile. They are comfortable and a fraction of the price these wheelchair people charge for their junk.
I want them to fix and return my old chair! I don't care it is 6 years old, it was a great chair!
Enough of my rant.