Canadian4Life
New member
- Joined
- Oct 30, 2009
- Messages
- 7
- Reason
- Friend was DX
- Country
- CA
- State
- Ontario
- City
- North Bay
Eryk and I were just sitting around talking, and we were looking at all these threads and forums - they are great, but both of us think it could use something new.
This forum is full of places for caregivers, those diagnosed and the like. But how about this...a forum just for youth. There are many out there who have parents or family members that have ALS...or have a form of MND themselves. Why not give them a place they can call their own - where they can ask questions, talk to others who are going through the same things and benefit from the advice/lessons of senior (by that I mean adults! ) members of the board.
Eryk's youngest sister is almost 16...obviously the baby of the family. When he was younger it wasn't Mom and Dad that spoiled her rotten...it was him. He doted on her, and boy did she return that love. To say the least, they had/have a very special bond. Tara won't say it (I was a teenager once - and stubborn as Hell.. ) but I could tell just by talking to her a little bit myself. She's scared; her and her big brother used to do so much together (heck, he would even take her to get her hair done - quite a feat considering he has an aversion to all things hairdresser! :lol and now it's a lot of work to get him through a day. Even at 15 she helps out; but she'll barely look at her brother, let alone talk to him. I know what part of it is - she feels left out, this much I know. All of her folks attention (or most of it) is focused on her brother - rightly or wrongly, it does not leave a lot of time for just her, since she is the only one of her sisters still living at home. A question...
She has a basketball (she's a VERY talented player) game next week. With all that has to be done for him, would it be possible to bring her big brother out to the game? I think it would mean a lot to her to have him there. Something in me says it's going to take a lot of planning, but it would be worth it.
Now for the best part...:wink: Her birthday is coming up (16...very important and all )soon - the time has been booked off from work and I have a present all ready for her. A Girls Day out...her and I and a couple of her friends (they're in on it already and so are her Mom and Dad.... ) lunch, movie, shopping - whatever she likes I'll take care of it. Me and my big mouth - the credit card is gonna get a workout! :razz: She's a great kid - I've known her since she was very little.
I think it would be great if there was a place on here where she could come and air out all her worries; her hopes, her fears you name it. If it could be with others who understand, even better. Could we make that happen for her and other youth affected by ALS?
Penny
This forum is full of places for caregivers, those diagnosed and the like. But how about this...a forum just for youth. There are many out there who have parents or family members that have ALS...or have a form of MND themselves. Why not give them a place they can call their own - where they can ask questions, talk to others who are going through the same things and benefit from the advice/lessons of senior (by that I mean adults! ) members of the board.
Eryk's youngest sister is almost 16...obviously the baby of the family. When he was younger it wasn't Mom and Dad that spoiled her rotten...it was him. He doted on her, and boy did she return that love. To say the least, they had/have a very special bond. Tara won't say it (I was a teenager once - and stubborn as Hell.. ) but I could tell just by talking to her a little bit myself. She's scared; her and her big brother used to do so much together (heck, he would even take her to get her hair done - quite a feat considering he has an aversion to all things hairdresser! :lol and now it's a lot of work to get him through a day. Even at 15 she helps out; but she'll barely look at her brother, let alone talk to him. I know what part of it is - she feels left out, this much I know. All of her folks attention (or most of it) is focused on her brother - rightly or wrongly, it does not leave a lot of time for just her, since she is the only one of her sisters still living at home. A question...
She has a basketball (she's a VERY talented player) game next week. With all that has to be done for him, would it be possible to bring her big brother out to the game? I think it would mean a lot to her to have him there. Something in me says it's going to take a lot of planning, but it would be worth it.
Now for the best part...:wink: Her birthday is coming up (16...very important and all )soon - the time has been booked off from work and I have a present all ready for her. A Girls Day out...her and I and a couple of her friends (they're in on it already and so are her Mom and Dad.... ) lunch, movie, shopping - whatever she likes I'll take care of it. Me and my big mouth - the credit card is gonna get a workout! :razz: She's a great kid - I've known her since she was very little.
I think it would be great if there was a place on here where she could come and air out all her worries; her hopes, her fears you name it. If it could be with others who understand, even better. Could we make that happen for her and other youth affected by ALS?
Penny