Muscle pain as one of the initial symptoms

[olly]

holdingouthope.
i was in touch with her by email and spoke to her on the telephone a few times for my friend del.
sadly del died earlier this year.
tell her caroline from the uk (dels friend) says hi

[holdingouthope]

Originally Posted by Erica

Holdingouthope, what was your dad EMG findings? Did he have any fasciculations in his back or limbs? Any visibly muscle atrophy?

We never received a hard copy (and waiting for our own records) but from what I remember from the exam, the doctor said that his "tongue was clean" and that there were no deteriorations there. He has nerve loss/damage to is bilateral lower extremities with the left leg worse than the right, and the left arm worse than the right (with the left leg the worst of all). She said there were some blocks in two out of three areas that she tested. The person testing him seemed to think he had MMN (I think she was basing that on the fact that there was no bulbar onset and that he had "blocks")but the doctors are convinced, based on his rapid progression/clinical presentation that it's ALS.

He had 5 days of IVIG at 30gms each (I believe) with no response as of yet. BUT I have good news, as of yesterday, we got an appt with the UTsouthwest ALS clinic for Monday!!! So we are eager for the experts to weigh in on all of this.

[holdingouthope]

Originally Posted by olly

holdingouthope.
i was in touch with her by email and spoke to her on the telephone a few times for my friend del.
sadly del died earlier this year.
tell her caroline from the uk (dels friend) says hi

I will! I'm so thankful and appreciative for the Renee and all the help she has provided both material and also emotional support.

[Erica]

Good luck with your Dad appt!!!