I do not have an ALS diagnosed and on most days when I don't let my imagination get the best of me, I believe I won't have an ALS diagnosed in the future. However, Erica, Hoping, and Tmasters, I do experience what you describe. In particular, routine-for-me activities makes me feel as if I have done some laborious and out of the ordinary manual labor. Vacuuming a single room requires me to pay dearly for DAYS. Going up a flight of stairs more than 2 or 3 times usually requires me to forfeit the rest of the afternoon or evening. Even bending over is a no-no. I have found that in the past 2 years I have had to continually reduce the level of physical movement my body participates in, or suffer greatly. This is what led one doctor to suspect mitochondrial disease. I have also suffered from awful cramps, and in bizarre locations (butt cheek, upper left back, etc..)
Erica, Hoping and T, can you elaborate on when your EMGs were in relation to your pain experiences? I had a clean EMG a little over a year ago on left leg and arm (the only "finding" was decreased recruitment on every poke; I have been assured that doesn't mean anything-thank you Wright, but on bad days...well, you know...!)
Lydia