LisaM
Member
- Joined
- Jan 9, 2008
- Messages
- 21
- Reason
- Loved one DX
- Diagnosis
- 11/2007
- Country
- US
- State
- California
- City
- Los Angeles
My father has been experiencing the symptoms of ALS for 4 years and was diagnosed 2 years ago. We have watched the decline go from his legs onward. The disease began to significantly affect his diaphram 8 months ago. Currently he can't move an inch and can only make a sound or two. I can't even imagine being trapped in that way.
He has had recurrent panic attack type episodes that come on for a few hours maybe 4 times a week. They have been horrible but there was a start and and end to them. the last week he is in a constant state of panic, and the last two days have been unbelievably difficult. He can't get comfortable, needs the same parts of his body readjusted ever moment, etc. It's been a nightmare for him, but a caregivers nightmare also. Every person in the house is yelling and screaming out of frustration.
His ativan is not working, or at least not enough. His usual medication regimen includes codeine, requip, baclofen...all help to calm down but they are not doing enough. Is there anything someone can recommend for this? He has a bipap but refuses to use one because it makes him feel more trapped. We talk to him, tell him stories to get his mind off stuff, but nothing is helping and it has gotten out of hand the last two days.
Any input would be helpful.
thanks,
Lisa
He has had recurrent panic attack type episodes that come on for a few hours maybe 4 times a week. They have been horrible but there was a start and and end to them. the last week he is in a constant state of panic, and the last two days have been unbelievably difficult. He can't get comfortable, needs the same parts of his body readjusted ever moment, etc. It's been a nightmare for him, but a caregivers nightmare also. Every person in the house is yelling and screaming out of frustration.
His ativan is not working, or at least not enough. His usual medication regimen includes codeine, requip, baclofen...all help to calm down but they are not doing enough. Is there anything someone can recommend for this? He has a bipap but refuses to use one because it makes him feel more trapped. We talk to him, tell him stories to get his mind off stuff, but nothing is helping and it has gotten out of hand the last two days.
Any input would be helpful.
thanks,
Lisa
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