lisaann1170
Distinguished member
- Joined
- Jun 9, 2009
- Messages
- 106
- Reason
- Loved one DX
- Country
- US
- State
- WI
- City
- Milwaukee
Good Heavens...
Yesterday, on the day that Dad was originally scheduled for his PEG procedure (long story, another thread), he ended up in the hospital anyway! He was and still is having pains that turned out to be caused by kidney stones.
I wish he could catch a break. He's had the ALS diagnosed for 3 1/2 months and is already moving into a power chair, needing a PEG, and looking into assistive speaking devices. Seemingly, his symptoms have progressed so quickly that he's really getting depressed. It breaks my heart.
Because of the kidney stones, he's in severe pain and he's struggling with swallowing the new meds (even the liquid ones). Because of the pain, he's not hungry, so he's not eating. And, he struggles to drink (even with thickening agents), so he's not getting enough fluid to pass the stones.
I thought I had a question here somewhere...
I think I'm feeling "lost" because as much as we try to make his life comfortable, the payoff for him gets overshadowed by some new symptom or pain.
Yesterday, on the day that Dad was originally scheduled for his PEG procedure (long story, another thread), he ended up in the hospital anyway! He was and still is having pains that turned out to be caused by kidney stones.
I wish he could catch a break. He's had the ALS diagnosed for 3 1/2 months and is already moving into a power chair, needing a PEG, and looking into assistive speaking devices. Seemingly, his symptoms have progressed so quickly that he's really getting depressed. It breaks my heart.
Because of the kidney stones, he's in severe pain and he's struggling with swallowing the new meds (even the liquid ones). Because of the pain, he's not hungry, so he's not eating. And, he struggles to drink (even with thickening agents), so he's not getting enough fluid to pass the stones.
I thought I had a question here somewhere...
I think I'm feeling "lost" because as much as we try to make his life comfortable, the payoff for him gets overshadowed by some new symptom or pain.