MarianneS
Active member
- Joined
- Jun 8, 2008
- Messages
- 64
- Reason
- PALS
- Diagnosis
- 06/2008
- Country
- US
- State
- ma
- City
- lexington
After reading all the responses here and contacting Beth directly I agreed to have a feeding tube placed. I am hopeful in the near future it will prove to life enhancing, which is what made me decide to get it. The procedure itself was horrible. Why can't I be like Joel or Glen and have smooth sailing? I went in on Wednesday afternoon, that night they tried to place a nasal-gastric tube, after four tries they gave up. I can certainly recommend this as a new way of torture! I was afraid my husband was going to clock the doctor, not that I would have objected! I have trouble swallowing and the the tube, the size of a garden hose I'm sure,gave me a bloody nose and kept coming out my mouth. They turned me over to the gastro department and I waited all day Thursday to see if they could squeeze me in, they couldn't and waited until 230pm Friday when they finally took me. No food in all that time and here I thought the idea was to stop my losing weight. Anyway they got it in, I heard they had a hard time, but no explanation. The pain medication they gave me made me really sick, ow I have a hole in my stomach and throwing up hurts. The settled on tylenol which takes the edge off the pain. I did finally get home Saturday about noon.
Enough of the gory deatils, now I have questions. I am doing bolus feedings and I wonder how long you are supposed to take to do them? My husband says just pour it in but it makes me nauseous. He also wants to jump from three cans immediatley up to the recommended five cans, but I feel so full. My secretions also seem much thicker, more coughing, ow!, is there a difference with different formulas, mine is Fibersource HN. Also where do you put the tube to make it somewhat invisible? Tape it high or low, or in between?
I'm sure I will get a handle on it all, and I'm sure it will be a good thing. Thanks for listening and I will await your input.
Marianne
Enough of the gory deatils, now I have questions. I am doing bolus feedings and I wonder how long you are supposed to take to do them? My husband says just pour it in but it makes me nauseous. He also wants to jump from three cans immediatley up to the recommended five cans, but I feel so full. My secretions also seem much thicker, more coughing, ow!, is there a difference with different formulas, mine is Fibersource HN. Also where do you put the tube to make it somewhat invisible? Tape it high or low, or in between?
I'm sure I will get a handle on it all, and I'm sure it will be a good thing. Thanks for listening and I will await your input.
Marianne