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Old 08-28-2009, 12:58 AM   #1 (permalink)
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Red face Guardian Angel indeed

I wanted to post about a wonderful man today that I met briefly over the phone for about 30 minutes. I was shocked that he actually answered the phone, as I have called many 'als' people trying to gain a sense of what 'to do' for the last few months. Needless to say, the other calls have gotten me nowhere.

For the first time today, I felt like I knew what to do, and how to handle what is going on.

My brother Tracy was diagnosed in May, but his symptoms began last November. He has bulbar onset. He refuses to take medications. He does not want to prolong his life. He has cognitive issues/ emotional lability. He moved in with me 3 months ago, after his fiancee' dumped him. I see him declining, and withdrawing rapidly on a daily basis. Sigh, the story goes as it goes.

Anyway, I feel compelled to exclaim my appreciation to Stu, for being there for me today, and genuinely listening, AND CARING to hear my sad plight. I am so lost in this disease, and diagnosis, trying with everything I have to help my brother, who really could care less. And in this, I am lost....

Thank you with all my heart, Stu....u made my day! (although coming home was hell)
My offer stands for any need of pet care!!!

Allyson
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Old 08-28-2009, 11:25 AM   #2 (permalink)
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YEAH STU!! Allyson, so sorry that you are going through all of this and yet, you are now a member of a FANTASTIC group of people! Take some time and poke around in the Forum. Tons of information and support available.
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Old 08-30-2009, 08:18 AM   #3 (permalink)
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Allyson, Thanks for sharing. Stu consistently comes through. He seems to really understand how important it is for people to understand that there is someone out there who will be there for them.
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Old 08-30-2009, 12:14 PM   #4 (permalink)
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Allyson,

I'm sorry your brother is not making this any easier for you. Thanks for sharing your encounter with Stu. It makes him all-the-more credible.

Good on you, Stu!

Zaphoon
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als, angel, bulbar, bulbar onset, diagnosis, onset, sad, story, symptoms, wanted


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