RoadKill
Active member
- Joined
- Aug 19, 2009
- Messages
- 91
- Reason
- PALS
- Diagnosis
- 05/2009
- Country
- US
- State
- MD
- City
- Suburbs
Went to Hopkins today. That was a complete waste of time. Got a Rilutek prescription.
My right arm and hand are completely useless. My left arm and hand are weakening. I've fallen twice and have an unsteady gait. I can't wash my (very short) hair. Brushing my teeth takes all my energy. I can't button buttons or zip up zippers...
I could do a hundred pushups 18 months ago. Now I can barely lift a fork with my left hand. I own loads of sports equipment I will never use again.
And they said I was in good shape and should be happy about it. They were happy. I guess not being in a wheelchair and on a ventilator and feeding tube are good.
No family. No close enough friends to want to help me. I don't know how long I can continue faking it at work. When I have to quit, I will lose my insurance. SSDI, sure, I'll eventually apply and can afford to live in my 11 year old car on that.
Why bother?
My right arm and hand are completely useless. My left arm and hand are weakening. I've fallen twice and have an unsteady gait. I can't wash my (very short) hair. Brushing my teeth takes all my energy. I can't button buttons or zip up zippers...
I could do a hundred pushups 18 months ago. Now I can barely lift a fork with my left hand. I own loads of sports equipment I will never use again.
And they said I was in good shape and should be happy about it. They were happy. I guess not being in a wheelchair and on a ventilator and feeding tube are good.
No family. No close enough friends to want to help me. I don't know how long I can continue faking it at work. When I have to quit, I will lose my insurance. SSDI, sure, I'll eventually apply and can afford to live in my 11 year old car on that.
Why bother?