Bestdadintheworld
Member
- Joined
- May 5, 2009
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 3/2009
- Country
- US
- State
- IL
- City
- Effingham
I have been reading everyone's post for sometime now.Thank you so much for sharing.
My problem began ,so that I new for sure something was a matter was Mar. 2007 .I had a tree service an did my own climbing an repelling removing limbs an trees. Any way I noticed I could not raise my right leg has high as I could ,at first I put it off as getting older ,I was 54 , I then begin tripping once in awhile dragging limbs to the chipper, then my legs an feet started hurting after using them for a while, then i started having severe calf cramps a night. Then foot drop right foot.
I am stubborn are stupid ,anyway I never went to see a Dr. until Oct.2007,.The nightmare gets worse first prednisone, then mri of the back, then epidural , then I was sent to a orthopedic Dr. he x ray-ed clinical exam ,said i had some compression on my l4 &5 ,but didn't feel that was the problem. He sent me to a nero, whom after emg ncv probtley diagnosed me with cidp, then i was sent sent to another nero closer to my area.He ran many test mri s blood, urine, spinel tap,the works.In the mean time he has me on 60 mg. of prednisone a day, it doesnt work at all, they start me on ivig. march 2008 i am on that routine for until DEC. 2008 no benefit ( I forgot to tell you fell trying to transfer my son whom has cp to bed an broke my hip May 23 ) Feb 2009 my nero sends me back to the same nero who gave me the first emg ncv ,he looks a me does some clinical test . Comes back with a script to go see the head of the als / mda division at Washington U. In St.Louis. March 2009 more test emg /ncv blood work you guys know the routine.
They seems to think it could be multi focal neuropathy,has me get a sural nerve biopsy, then he calls me with news that it doesn't show any inflammation. So no treatment ,only observation, I went back Jun.4 2009 another emg /ncv (about the same). Now I am going back in Oct. he called me an told me to call if I showed any improvement are worsening, he wants to see me sooner.
I can not walk, I have much atrophy in my legs, foot drop both feet, much more strength in my left leg then my right, pain in my lower back. But my upper strength is very good.
The Dr. said he was ready to call it mnd ,but was not ready to call it als. They also gave me script to get a power chair.
So that is my story. My son set up this account for me hence the name. Thank You for looking. I know it will be hard for you to read. I am no scholar.
Opinions are welcome!
My problem began ,so that I new for sure something was a matter was Mar. 2007 .I had a tree service an did my own climbing an repelling removing limbs an trees. Any way I noticed I could not raise my right leg has high as I could ,at first I put it off as getting older ,I was 54 , I then begin tripping once in awhile dragging limbs to the chipper, then my legs an feet started hurting after using them for a while, then i started having severe calf cramps a night. Then foot drop right foot.
I am stubborn are stupid ,anyway I never went to see a Dr. until Oct.2007,.The nightmare gets worse first prednisone, then mri of the back, then epidural , then I was sent to a orthopedic Dr. he x ray-ed clinical exam ,said i had some compression on my l4 &5 ,but didn't feel that was the problem. He sent me to a nero, whom after emg ncv probtley diagnosed me with cidp, then i was sent sent to another nero closer to my area.He ran many test mri s blood, urine, spinel tap,the works.In the mean time he has me on 60 mg. of prednisone a day, it doesnt work at all, they start me on ivig. march 2008 i am on that routine for until DEC. 2008 no benefit ( I forgot to tell you fell trying to transfer my son whom has cp to bed an broke my hip May 23 ) Feb 2009 my nero sends me back to the same nero who gave me the first emg ncv ,he looks a me does some clinical test . Comes back with a script to go see the head of the als / mda division at Washington U. In St.Louis. March 2009 more test emg /ncv blood work you guys know the routine.
They seems to think it could be multi focal neuropathy,has me get a sural nerve biopsy, then he calls me with news that it doesn't show any inflammation. So no treatment ,only observation, I went back Jun.4 2009 another emg /ncv (about the same). Now I am going back in Oct. he called me an told me to call if I showed any improvement are worsening, he wants to see me sooner.
I can not walk, I have much atrophy in my legs, foot drop both feet, much more strength in my left leg then my right, pain in my lower back. But my upper strength is very good.
The Dr. said he was ready to call it mnd ,but was not ready to call it als. They also gave me script to get a power chair.
So that is my story. My son set up this account for me hence the name. Thank You for looking. I know it will be hard for you to read. I am no scholar.
Opinions are welcome!
