admlizkirk
Member
- Joined
- May 5, 2009
- Messages
- 13
- Reason
- Learn about ALS
- Country
- US
- State
- Indiana
- City
- Muncie
Hello everyone. I don't know if you remember me, but I was posting in May while I was at Mayo clinic rochester about my mom going through tests for ALS.
They did say she didn't have, but said they were pretty sure she has MSA, but not 100% sure.
Just an update. My mom went downhill quickly after we got home. She is now not able to stand, and we are fighting with getting her sinemet regulated. I was, at first, very happy she didn't have ALS, but then realized after getting her home that MSA is not very different of a disease.
The only difference I can tell is that it might be a little slower progression than ALS, but that varies from patient to patient.
I treasure each day I have with my mom and still pray for a cure or healing for her. I did find that you all are very lucky that ALS has gotten the prominence that it has. Nobody knows what MSA is, and when you say, well its very similar to ALS, people say, "oh ok"
I am not diminishing anything with your disease, but it is frustrating.
Just wanted to let you know what has been going on. Thanks
They did say she didn't have, but said they were pretty sure she has MSA, but not 100% sure.
Just an update. My mom went downhill quickly after we got home. She is now not able to stand, and we are fighting with getting her sinemet regulated. I was, at first, very happy she didn't have ALS, but then realized after getting her home that MSA is not very different of a disease.
The only difference I can tell is that it might be a little slower progression than ALS, but that varies from patient to patient.
I treasure each day I have with my mom and still pray for a cure or healing for her. I did find that you all are very lucky that ALS has gotten the prominence that it has. Nobody knows what MSA is, and when you say, well its very similar to ALS, people say, "oh ok"
I am not diminishing anything with your disease, but it is frustrating.
Just wanted to let you know what has been going on. Thanks