[email protected]
Member
- Joined
- Mar 10, 2009
- Messages
- 10
- Reason
- CALS
- Country
- US
- State
- MN
- City
- Minneapolis
Hi everyone. I am new to this forum. My husband was diagnosed with ALS in July of 08. He has the bulbar onset and has lots of trouble swallowing and speaking. He has a gj tube and a communication device. He doesn't use the communication device too much yet, but people have trouble understanding him and he tends to use me for a translator of sorts -- but sometimes I have trouble understanding him too.
My sadness comes from many aspects, but one of the hardest lately has been social situations. Food is usually what brings people together in social situations. Since my husband can't eat foods too much anymore, it is so hard for me to see him with a longing look in his eyes for the food that is being served. He can only eat cream soups. I want so much to make him better!
Just wondering how others cope.
My sadness comes from many aspects, but one of the hardest lately has been social situations. Food is usually what brings people together in social situations. Since my husband can't eat foods too much anymore, it is so hard for me to see him with a longing look in his eyes for the food that is being served. He can only eat cream soups. I want so much to make him better!
Just wondering how others cope.