Swelling
I'm so sorry you're having so much discomfort. While Jeff's feet were extremely cold and blue-ish purple, it was his hands/fingers that swelled and looked like your feet. This is what we did...we would massage, massage, massage....for 30-60 minutes 3 times a day. I would take each finger (and in your case, each toe) and literally push the fluid up through his hand and into his arm where it dissipated...you can see the fluid move. I would start higher on your foot and work the fluid toward your ankle and up into your calf area. With each massage, I would move an inch closer toward your toes...until I was able to massage each toe and push the fluid all the way up into your ankle/calf. You will feel a huge relief...Jeff loved the massages and the relief they brought...you can actually see progress within your first few minutes of massage. The massages must be made with good pressure and conviction (to see good results!). Please, everyone, be careful not to hurt your pALS...s/he will tell you how much pressure to apply. Good luck and I wish you all comfort.
Louie
former cALS to husband, Jeff: 7-5-2007