Felicia38
Active member
- Joined
- Feb 5, 2009
- Messages
- 50
- Reason
- CALS
- Country
- US
- State
- Alabama
- City
- Phenix City
We went to Emory yesterday and we got some positive news. Dr. Glass thinks that Charlie(my husband)has Peripheral Neuropathy Vasculitis instead of ALS. He says that Charlie's immune system is attacking itself and that his nerves are having mini strokes.
Dr. Glass said he would do a muscle and nerve biopsy this week or next to confirm what he is suspecting and then we will begin treatment. As long as Charlie responds to treatment he should start getting better within 6-12 months. If he doesn't respond, than it will continue to attack his body in different areas and eventually it will be fatal. Dr. Glass said that his arm that he lost the use of 3 years ago may even heal to where he can use it again. WoW! If everything is the way he says it is this is the best news ever! The only thing is we have to wait for the biopsy to confim and then remain hopeful that the treatments will work. If the biopsy doesn't confirm this, then we are back to the ALS story. I sure hope it is what Dr. Glass thinks it is. I will let you all know when I know more. Thanks to everyone for all of the guidance, these past few weeks of waiting have been hard.
Dr. Glass said he would do a muscle and nerve biopsy this week or next to confirm what he is suspecting and then we will begin treatment. As long as Charlie responds to treatment he should start getting better within 6-12 months. If he doesn't respond, than it will continue to attack his body in different areas and eventually it will be fatal. Dr. Glass said that his arm that he lost the use of 3 years ago may even heal to where he can use it again. WoW! If everything is the way he says it is this is the best news ever! The only thing is we have to wait for the biopsy to confim and then remain hopeful that the treatments will work. If the biopsy doesn't confirm this, then we are back to the ALS story. I sure hope it is what Dr. Glass thinks it is. I will let you all know when I know more. Thanks to everyone for all of the guidance, these past few weeks of waiting have been hard.