annabelle1619
New member
- Joined
- Mar 11, 2009
- Messages
- 6
- Reason
- PALS
- Diagnosis
- 02/2009
- Country
- US
- State
- WI
- City
- MIDDLETON
hello, new here. i'm 31, a mommy of a gorgeous 4 yr old, female (obviously), newly diagnosed, freaked out. i have limb onset. i have no breathing nor bulbar symptoms to date. just my body.
i have a primary question. does anyone else have the symptom of being really sick with their als? no appetite, yuck-o feeling. i have always been a good eater and the last month i simply CANNOT get an appetite. the evening is a bit better than the day, but in general i feel nauceous, yucky. again, nothin' to do with swalloing or choking or anything like that- just with the appetite. i never see this as a symptom of als, wondering whether this is als causing this lack of appetite, brain fog, shaky, genreally ill feeling. all i mentioned are motor issues (along with swallowing, breathing for those with bulbar).
i would so love to hear if anyone presented with 'generally not feeling good' and any hints for dealing with this aspect if indeed those have experienced it.
i was so happy to find a forum like this- i have noticed seemingly many more with bulbar onset. is this because those with limb can't type?
and finally, what is a PEG?
best! annie
i have a primary question. does anyone else have the symptom of being really sick with their als? no appetite, yuck-o feeling. i have always been a good eater and the last month i simply CANNOT get an appetite. the evening is a bit better than the day, but in general i feel nauceous, yucky. again, nothin' to do with swalloing or choking or anything like that- just with the appetite. i never see this as a symptom of als, wondering whether this is als causing this lack of appetite, brain fog, shaky, genreally ill feeling. all i mentioned are motor issues (along with swallowing, breathing for those with bulbar).
i would so love to hear if anyone presented with 'generally not feeling good' and any hints for dealing with this aspect if indeed those have experienced it.
i was so happy to find a forum like this- i have noticed seemingly many more with bulbar onset. is this because those with limb can't type?
and finally, what is a PEG?
best! annie