Old 10-06-2009, 03:40 AM #31 (permalink)
Join Date: 2009
City: Fairfield
State: Montana
Country: US
Diagnosed: 12/2008
Interest: I have been diagnosed with ALS.
Posts: 322
Big Mike is on a distinguished road
Big Mike Big Mike is offline
Join Date: 2009
City: Fairfield
State: Montana
Country: US
Diagnosed: 12/2008
Interest: I have been diagnosed with ALS.
Posts: 322
Big Mike is on a distinguished road
Default Re: ALS - Rare Disease?

Originally Posted by tmasters View Post
Hi Mike,

My first symptoms were in my legs. First muscle weakness was in my right calf muscle, and gave me a painless limp.

I have both UMN and LMN symptoms, though the LMN are more prevalent.

Wow! 400:1 and 600:1 seem much more frequent than I was led to believe. Do you have a link to the ALSTDI claim? I guess if people aren't dying of cancer or car crashes (airbags) anymore they gotta die of something, that pushes up the ALS numbers?

Take care,
Thanks for the info, Tom. I have the UMN dominant variant but the LMN part is creeping up on me and my left foot/ankle is especially bad. Here's the statement and link to the ALS figures:

ALS TDI (ALS Therapy Development Institute) :: ALS Frequently Asked Questions

At any given time, there are over 30,000 patients diagnosed with ALS living in the United States; the number world-wide is estimated at around 400,000. Generally speaking, someone is diagnosed with ALS every 90 minutes. The life-time incident rate for an average person is often estimated at between 1/400 to 1/600 - a number that is similar to the incidence of multiple sclerosis; a disease, however, having a substantially longer average survival prognosis and thus larger living patient population.
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