My husband was diagnosed 8/05 with ALS. The 12/05 we were told it is bulbar ALS. He was been so sleepy the past 2 years. In July his gait was was unsteady and this lead to his hospitalization and diagnosis. He is still able to walk, altho often walks backwards, before getting his balance and going forward. He has fallen a few times. He is still able to eat well, but drools and coughs loudly often. My only problem is he has to have the T.V. on 24 hours a day and sleeps intermittently all day,
Has anyone else had this experience? I am coping well, but the nights are tough. Thanks for sharing. This is a wonderful site.
Has anyone else had this experience? I am coping well, but the nights are tough. Thanks for sharing. This is a wonderful site.