ALSFORUMS.COM   - ALS/MND Support Group   - Fibromyalgia Support Group   - PLS Support Group   - PBP Support Group   - PMA Support Group   -  
Old 10-23-2008, 10:32 AM   #1 (permalink)
Very Helpful Member
Registered Member
 
MtPockets's Avatar
Join Date: 2006
City: Gulfport
State: Ms
Country: USA
Diagnosed: 05/2006
Posts: 1,537
Blog Entries: 5
MtPockets is on a distinguished road
Smile Baclofen What happens if I stop taking this med?

I decided on my own to try to cut back on the many medications I have been taking to cut costs. I was able to successfully remove a couple of them with no noticeable effects. Then I decided to cut out the Baclofen which I was taking 20mg 3 times a day.

I had been told that it takes several days for this medicine to get into the system. However, it took only one day for it to apparently leave my system.

The next morning I awoke to the strange feeling of spasms in both legs, both high and low. It felt strangely like worms crawling under the skin, or maybe an alien baby trying to get out.
It was weird, and very noticeable. I immediately returned to my former dose.

When I told my Neurologist, she was horrified, and said you can not do that. You cannot just stop taking a drug like that, it might kill you because of the withdrawal. Whatever made you do that? Do not ever do that again. Believe me I won't.

Just wanted you to know, consult your Doctor before experimenting with dosage adjustments, it can be very dangerous if not deadly.

MtPockets is offline  
Old 10-23-2008, 11:47 AM   #2 (permalink)
Member
Registered Member
Join Date: 2007
City: Mentone
State: CA
Country: US
Diagnosed: 12/2007
Posts: 423
sharonca is on a distinguished road
Default

Just wondering... did you fess up on the othe drugs you quit?

Sharonca
sharonca is offline  
Old 10-23-2008, 12:10 PM   #3 (permalink)
Extremely Helpful Member
Registered Member
 
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Posts: 2,763
olly is on a distinguished road
Default hi capt al

your neuro is completely right,you can not just quit a drug like baclofen.
you can cut down slowly 10mg at a time and see how things go.
long term side effects of baclofen is muscle weakness but we have this anyway.
i cut my dosage down from 60 to 20mg over many months just to see what happend.
my spasms in my body did not get too bad but the myoclonus became a big problem again so i am now on 40mg with a bit of myoclonus.
it is tricky ajusting meds and ofton its choosing the lesser of two evils with regards to symptoms and side effects.
i hope you are feeling better after the shock to your system.
olly is offline  
Old 10-24-2008, 10:06 PM   #4 (permalink)
New Member (Say Hi)
Registered Member
 
gimpydad'slady's Avatar
Join Date: 2008
City: Lula
State: Georgia
Country: USA
Diagnosed: 00/0000
Posts: 63
gimpydad'slady is on a distinguished road
Default Even missing doses...

My hubby takes 15mg x4 a day. If he even misses a dose, his legs jump uncontrollably every time he tries to flex his foot to stand or stretch. According to him, it is quite uncomfortable when this happens. I know it looks uncomfortable when I see it happen. Makes me feel even more uncomfortable knowing that I can't stop it when it happens. So we try to make sure that he doesn't miss a dose.
gimpydad'slady is offline  
Closed Thread

Tags
back, baclofen, balcofen, drugs, immediately, medicine, neurologist, spasms, wanted


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search


Similar Threads for: Baclofen What happens if I stop taking this med?
Thread Thread Starter Forum Replies Last Post
When to stop driving? Just J General Discussion About ALS/MND 13 08-16-2008 10:43 PM
Never stop searching jj76 Do I Have ALS? Is This ALS? 2 07-11-2008 12:16 PM
Few more questions, then I'll stop.... Moe80 Do I Have ALS? Is This ALS? 8 04-30-2008 03:14 PM
AMERICAN EXPRESS Members Project: HELP STOP ALS needs your vote NptAMND Event Announcements 0 07-19-2007 06:14 PM
When to stop looking for another diagnosed? COlisa General Discussion About ALS/MND 5 07-04-2006 07:31 PM


    
   
   
   
   
  ALSforums - Get help and support with ALS/MND