Old 08-18-2008, 02:50 PM #31 (permalink)
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Default vibration feeling.

i most definatly think this is umn related.
even though we feel it as a sensory symptom i know it is not.
when i had my ncv i was sure it would show up but it did'nt.
i think it could be related to the clonus/hyperreflexia or spacticity as these seem to be worse when the vibration feeling is stronger.
i could maybe show up on a mr spectroscopy as this evaluates umn dysfunction.
however this machine is not used to diagnosed and is not readily available in hospitals,at least in the uk.
from research i have found it's used in trials or rarely to follow progression.

rose,i hope you enjoyed your day out. you can't beat a good book.
take care everyone.
caroline
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Old 09-03-2008, 10:36 PM #32 (permalink)
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Hello my friends,

I thought I would jump in on here, since it's a voice issue. Got a message from my sister-in-law today that she had shipped the "Dynavox" to my house and it should arrive on Friday. It belonged to my brother who was diagnosed with ALS in 2003. He died in 2004 and I guess it was just laying around the house.

I have no idea what to expect, but I'm sure my teenagers can teach me how to use it very quickly! Maybe I'll get the sexy Mae West voice I've always dreamed of?

Cross your fingers!
Keep the faith,
brenda
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Old 09-03-2008, 10:58 PM #33 (permalink)
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Great! Let us know how it works. I've called the speech path about mine, and she said it's sitting there waiting to ship, but they're waiting for Blue Shield to let them know how much they will pay. I am really motivated to get going on it.

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