Unread 06-24-2008, 10:49 AM #1 (permalink)
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Default losing use of your hands

I was wondering if anyone who has lost use of there hands or is losing use of there hands how it felt besides getting weaker. My hands have a pins and needle sensation in them in even when i am not using them. They are not totally numb but the weaker they get when I rub my fingers together the more it feels like I am losing sensation or losing feeling in them.
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Unread 06-24-2008, 12:10 PM #2 (permalink)
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Default Crystal

My hands are really getting weak, my hands cramp and my fingers lock up in a clinched possition. I do however have normal sensations in my fingers and hands. I would ask doctors if maybe something else might be going on. Take care

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Unread 06-24-2008, 01:13 PM #3 (permalink)
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My mom slowly lost feeling in her hands then she had no feeling at all.
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Unread 06-24-2008, 01:51 PM #4 (permalink)
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Default

thanks for the replys

Rob- are your hands just weak or do you have atrophy as well?
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Unread 06-24-2008, 03:08 PM #5 (permalink)
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Default Hand Problems

My ALS started in my legs but after about two years moved to my hands. I don't have or have never had tingling or numbness in either my hands or my legs. I just lost a lot of strength and dexterity in my hands. For example, I used to be a guitar player but now I can no longer hold a guigar pick with my right hand or chord the strings with my left hand. I can't open a bottle of water and I have to hunt and peck to type now whereas before I was a pretty good typist. I have more trouble with my left hand, but again I'm right-handed.
One thing I've learned since I have been researching this damnable disease is that nobody has exactly the same symptoms.
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Unread 06-24-2008, 03:45 PM #6 (permalink)
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Default

Quote:
Originally Posted by crystalkk View Post
I was wondering if anyone who has lost use of there hands or is losing use of there hands how it felt besides getting weaker. My hands have a pins and needle sensation in them in even when i am not using them. They are not totally numb but the weaker they get when I rub my fingers together the more it feels like I am losing sensation or losing feeling in them.
I dont know if you have a diagnosed of als but I never heard of numbness and tingling That sounds like its coming from your neck. I have lost use of my hand and I have atrophy cramping and curling of my hand and fingers.

Get a cervical MRI


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Unread 06-24-2008, 05:47 PM #7 (permalink)
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Pat,

I don't have a diagnosed yet I am under watch by ALS specialist, I have had nuemerous Cervical MRI's , i have some slipped discs nothing hitting the nerve roots and no compression on the cord. My hand is not totally numb the weaker it gets and the more muscle that I loose the more sensation is lost .... The same thing is happening with my feet
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Unread 06-24-2008, 05:49 PM #8 (permalink)
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Default You don't have ALS?

Dear Crystal:

I am confused. Were you diagnosed with ALS?

My husbands problems started in his arms and neck. Weakness. No pins and needles.
But his very first EMG with local neuro came up abnormal, pointing clearly to a MND.
When he went to ALS clinic in Phila. Dr. McCluskey clearly said PMA form of ALS.

He has now lost complete use of both arms and never has he said pins and needles.

I work for a neurosurgeon and what you are describing, patients come in with and need surgery and it is fixed.

I hope you have a fixable problem and a MRI and cervical myleogram would show a surgical problem if it is there. What has the ALS clinic said about your symptoms?
Did they say yes or no on ALS?

If they say no ALS you can most likely take that to the bank. They are wonderful!

Good luck and I will say a prayer for you!

Patty
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Unread 06-24-2008, 07:03 PM #9 (permalink)
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Patty,

In the beginning Dr. McCluskey kept saying no ALS, but now I am progressing and he has me under watch.
I have had so many cervical MRI's.... I did see a surgeon in the beginning, before I even went to McCluskey.
I never had a cervical myleogram though, no one has suggested it......Put now I am having alot of symptoms in my face alot of twitching and lost of muscle, I have been biting my cheek sometimes and i have alot of excessive saliva in my mouth and i am choking on it. He is a wonderful and a very compassonate dr.
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Unread 06-24-2008, 11:33 PM #10 (permalink)
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I am sorry to hear of your latest symptoms. No, I do not think it is surgically related with these facial problems. I pray it is not ALS and hope that Dr. McCluskey will send you to someone if he cannot help you. He was great with us that way when we wanted another opinion. But honestly, he is so smart. We went to John Hopkins to the head and said exactly same thing that McCluskey did.

Will keep you in my prayers!

Take care honey,

Patty
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