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06-23-2008, 05:29 AM
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| New Member (Say Hi) Join Date: 2008 City: Bridgeville State: California Country: US Diagnosed: 06/2004 Interest: I have been diagnosed with ALS. |
I have been an ALS patient for four years now on bipap 24/7 and have started experiencing an awful "metallic" taste and a burning sensation in my nose, lips, mouth, eyes and lungs. Has anyone else with a similar problem found anything that could help? thanks ellen | ||
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06-23-2008, 08:49 AM
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| Very Helpful Member Join Date: 2006 City: lopatcong NJ State: newjersey Country: US Diagnosed: 7/1999 Interest: I have been diagnosed with ALS. |
It may be coming from the Bipap .You may have a sinus infection. Go see an ENT specialist He may have an answer. I dont think its from the ALS. PAT | ||
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06-29-2008, 04:17 AM
| #3 (permalink) | ||
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| New Member (Say Hi) Join Date: 2008 City: Bridgeville State: California Country: US Diagnosed: 06/2004 Interest: I have been diagnosed with ALS. |
obviously i have spoken to a doctor about these symptoms with no answers i was hoping i might find somone in a similar situation thankyou for your response
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06-29-2008, 08:53 AM
| #4 (permalink) | ||
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| Moderator Forum Moderator Join Date: 2006 City: Anytown State: New England Country: US Interest: I am interested in learning about ALS/MND. |
I "googled" the metallic taste issue and there are a number of reasons, but the burning sensation in your eyes, throat and tongue might also be a clue. I guess if your doctors are not worried then that is a good thing, but still, it must be very annoying!
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06-29-2008, 03:22 PM
| #5 (permalink) | |||
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| Moderator Forum Moderator  Join Date: 2004 City: NW of Toronto State: On Country: CAN Diagnosed: 10/2003 Interest: I have been diagnosed with ALS. |
Does the bottom of the humidifier have a metal bottom? I have a friend with a CPAP that had the bottom of his start to corrode and little metal particles started floating in the water. Something to check. AL. | |||
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06-30-2008, 04:29 AM
| #6 (permalink) | ||
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| New Member (Say Hi) Join Date: 2008 City: Bridgeville State: California Country: US Diagnosed: 06/2004 Interest: I have been diagnosed with ALS. |
thanks for the ideas im going to check into the humidifier see if that has anything to do with it im reaching here cheers | ||
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metallic taste 
