My Journey - Page 2

olly · 04-09-2008, 05:10 PM

lorie
i am so sorry i made you cry, like you and vmd i don't discuss my symptoms and anxieties with my family. my family are not very close,i have to rely on my 19yr old son alot but don't tell him everything so i either keep it bottled up inside or i come on the forum. you all probably know more than my family does. i am a very private person but i feel able to express my feelings more to you all as we can understand each other. the love and support here is so overwhelming.
cutikka
god loves you more than you know even though times can be bad and it does not feel like it. we all love you here and know how you are struggling to cope and we are always here for you.
god bless
caroline

Al · 04-09-2008, 05:43 PM

Hang in there Lorie.
AL.

rick/Wpg · 04-09-2008, 09:36 PM

Awwww...Lorie. Our thoughts and prayers are with you!
Rick & Joan

Peg B · 04-09-2008, 10:37 PM

Dear Lori,

Please know you are in my prayers also. Sincerely, Peg

CindyM · 04-10-2008, 09:38 AM

Hello my friend. DO you see how many lives you have touched? Now you know how much we all care, if you couldn't guess before. TOgether, we will weather this. Hugs, Cindy

rose · 04-10-2008, 09:07 PM

Lori, I'm so new to this forum that I hesitated to respond to your post. I just wanted to let you know that I'd been reading back through previous posts on this board, and you have stood out to me as someone that is compassionate and strong. I'm so sorry you've got this to face! I hope you know that you're not alone in this. Take care, Diane

Lorie · 04-10-2008, 09:32 PM

Rose, Your thoughts are welcome. Thank you for caring. I try to accomplish good in everything I do. I have always been that way. I have always put myself at the bottom of the list, by my choice. If I never made it to me, it is ok! I will still be the same person I am.

Cindy, Yes I think I see the impact I have on people here. And ALS its self. It humbles my heart. All I have ever wanted to do is help people. Even before Tim's DX. I am strong but also Human. You know what I mean!

Everyone is so remarkable, if the "Normal" could just see us. They don't know how good they have it. But we have a very good community of Friendship and Support.

Love you Guys/Gals!

Lorie-

ps Don't miss my updated post about the MDA interview for the Telethon. It is on event announcements. We are on our way!

northerngirl · 04-10-2008, 10:38 PM

Dear Lorrie,
I pray it is not, hang in there. your a special gal!!
Waiting with you for result!

Lorie · 04-11-2008, 12:08 PM

I feel like I am waiting on a Sentencing hearing. But I vow to remain Strong and Positive. I heard something on TV the other night that makes a lot of since. It is very much how Tim and I are. This is how it was said:

In Suffering-You can become Better or Bitter. I will not become a Bitter person. And Tim has not. Although we all have our moments of despair.

Thank you for your Caring and Support.

Lorie

fiddleplayer51 · 04-11-2008, 11:08 PM

Lorie,
In the short time that I've participated in this forum I have read many of your posts and know what a kind and loving person you are. You always have just the right words for others. Hopefully, you will find the support you need here on this forum and I hope too from the people you know where you live. Who can possibly understand why these things happen and why some people seem to get multiple burdens to carry.
Take care of yourself. Try not to get too tired. I know from reading responses to your posts that so many people love and care about you. Try to put yourself first some. Others can pick up the slack and they might actually benefit from doing so.
Blessings to you, Lorie,
Jane

northerngirl · 04-16-2008, 11:54 PM

Lorie,
I have been following your story and just want to say Stress does horrible things to our bodies. I feel like a bowl of rice krispies with all the twitches I have, forget the swallowing stuff, and the numbness and tingling. After all the Specialists I have seen it boils down to stress (Mom's ALS problems mostly) some tmj and perhaps tendinitis.
I pray this is what is going on for you as well. Has any one else in your family history ever had ALS before? besides Tim. Hang in there, I know telling you to try and not worry won't help. But try and find more moments to laugh.
Luv Laurie

Lorie · 04-18-2008, 04:33 PM

I would feel better if all my Test had not came back abnormal. The Neuro, himself said it didn't look good. On the other hand, I am hoping is is something else. Something that Tim can be tested for.

Saturday Night, I was honest with my husband and told him I was scared to go to my appt. on the 23rd. He said he is scared to. But he always hopes for he best, but expects the worse. He said maybe it is some kind of Muscular Dystropyhy that can be treated. But we would take one step at a time, and that he will be there for me through anything.

He said he had already seen changes in me before. It just didn't dawn on him. I still say I didn't want to worry anyone. I am Selfless not Selfish and have always put others before me. (my choice).

I have been Blessed with a Wonderful, Amazing Husband. He has helped me so much in the 23 years I have known him. Soon, I am going to Blog some about Tim's and my Lives. Believe me its all true. But here we are, Faithful, and Proud to be a Part of this world.

Lorie

cukita99 · 04-18-2008, 04:49 PM

lorie, im praying for u n tim. i sure wish my sisters were more like u. i sure could use their help. i know they have their families but once in awhile they could come n make me feel better. a little visit..

vmd · 04-18-2008, 04:49 PM

You are very fortunate to have such a supportive husband.

brooksea · 04-18-2008, 04:56 PM

Lorie,

Sending positive vibes your way! Hope you will be able to enjoy your weekend.

We are all pulling for you!

Still wish I had a magic wand and could make all of this go away!

Hugs!