My Journey - Page 11

GlenBrittle · 07-26-2009, 09:46 AM

Quote:

Originally Posted by MtPockets

We are a great new club with select few members. Most people would shy away from membership, due to the negative stigma attached to It, but for those interested all you have to do is be a little "different" than most folks.
I was shocked when channel surfing last evening to see Young Frankenstein was on TV yesterday. I wish I had known it was coming on so I could have let you watch it. It always is good for a laugh.
By the way I think we ought to charge dues of at least one laugh a week from the members? What do you think new members?

I always said I was abby, abyy normal.

Is there a limit on how "different" you must be ?

Will I get the letter in the mail -
"We are sorry but we can not accept your application due to lacking of differency"
or
"Dude , you are whacked - your are scaring the members - DENIED"

sharonca · 07-26-2009, 07:31 PM

I always say I have no pain. But I have lots of joint pain while trying to sleep.

BarryG · 07-27-2009, 01:13 AM

Who was it that said "I wouldn't want to belong to a club that would have me as a member"

MtPockets · 07-27-2009, 06:46 AM

If you think you want to be a member you r 1.
I guess it is sort of like you might be a redneck if????
If you have any suspicion that you are ab-normal then you qualify for our group.

crystalkk · 07-27-2009, 09:41 AM

Who is normal?????

BethU · 07-27-2009, 10:48 PM

Who was it that said "I wouldn't want to belong to a club that would have me as a member"

I believe that was Groucho Marx, one of the funniest people ever!

Lorie · 08-04-2009, 04:56 PM

Pam you and Eric can join any of my Groups! I Thank you my friend Capt. Al. We finally pulled the PAIN symptom out of the wood work!

Tim had a lot of pain before he progressed. He also had denervation early on and had problems sitting and standing. I mean, he had severe cramps for all those years before DX. And remember, he was DX right off when sent to a Neuro. He was fed pain meds from MD Quacks instead of sending him to a Neurologist.

What is typical for ALS, may not be for everyone else. If you do not have pain, Great!

In May 08 WRIGHT said he would put money on it that I had a DISC problem! I WISH I DID!!!!!!!!

I have ran up on a Familial history on my Grandmother's side of the Family that I did not know. I ordered my Great gradfather's Death certificate because of a picture I have that I had seen years ago that did not look right. My daughter is into Geneology and I seen the picture again and new he was not normal. I got it in the mail yesterday, not good...... I am trying to get in touch with those realitives that are Living to see if there was anymore in that part of the Family. More to research. I will update.

I will post the picture of him and explain later!

Lorie

Lorie · 08-04-2009, 05:43 PM

Tim is not doing well. I just don't know what to do anymore. Can anyone imagine taking care of your brother with ALS, and now your Neuro. highly suspects you have a slow onset to??????

I need all the Prayers I can get for Tim. He has to get this ANGER out of his HEART! That is what hurts me so bad. He want let things from the past go. Every time I go help with him, I have to take a Xanax on the way there. He never is angry with me, just everybody else.

The first thing he said to me yesterday when he woke up was "When I die, I don't want these people at my Funeral". The Family that is taking care of him. I was so upset and had to walk off. I did not tell them. I have to get him some Mental Help somehow!

Lorie

GlenBrittle · 08-04-2009, 05:48 PM

Quote:

Originally Posted by crystalkk

Who is normal?????

I am normal , everyone else is completely messed up !

Wabbit

tdamess · 08-04-2009, 10:28 PM

cukita i am now in your shoes i hurt and hate every minute of it ,never felt so helpless i cant save my son and i know not to ask how much worse can it get.
lorie i am very sorry you have to go thru this as watching it happen to someone you love and to be on the other side of the fence as well at the same time , i really cant think of any words that can comfort you but you have my best hopes for you and your brother

hopingforcure · 08-05-2009, 08:59 AM

Lori.
I just wanted to take a momemt and send a hug your way. I get angry when I think about what you are going through. I am also pretty sure my situation has some family history and am now working on that side just as you are. My love to you and your daughter and husband. Whatever I could ever do to help, I am here.

MtPockets · 08-05-2009, 09:27 AM

Lorie go read this:
http://www.alsforums.com/forum/showt...6400#post86400
I am glad others have come forth with the pain issue. I went to my VA Doctor yesterday and he recommended a Demerol pump be installed. I am allergic to all pain meds but Demerol and Lortabs or he would have recommended a morphine pump.
I have had chronic low back pain now for over 20 years and when the ALS hit about 4 years ago things just got worse. He said the pump would help even out the medication because the up and downs of relief would cause fasciculation's. That is the first time anyone has told me that. He said he knew the ALS was causing them but that they would be worse with themed swings. I will consult with my pain management Doctor and see if he agrees.
I pray for you all and wish you a peaceful, blessed day. Here is a hug for everyone that needs one. Wish I could be there in Person to give it to you.

Lorie · 09-06-2009, 09:09 PM

Sorry I haven't been on much!

Tim is not doing well. He is loosing his Appetite, He can hardly eat now. And his voice is starting to go. I feel so helpless. Even when you do everthing you can for him and ALS! It is not enough. I feel like my heart is going to explode!!!!!!

He had Mom call me tonite so he could talk to me, He was CRYING because he misses me. And I see him all the time! So Sad!

I am not feeling to well myself! I have to go to the Specialist at U.A.B. on the 18th. And my Insurance want cover it because the Doctor is not in there Network. But my Husband said I gotta go!!!!

Lorie

brooksea · 09-06-2009, 10:50 PM

So sorry Lorie. It's really tough dealing with all this and I know you have been such a trooper.

I hope you will go to that specialist. Sounds like your husband is very concerned.

Blessings to you and your family.

KeeKer · 09-07-2009, 01:03 AM

Hi Lori, Hang in there girl! Your husband is right , you have to take care of yourself too. So sorry to hear about your brother not being able to eat. Hope that his voice lasts for you. It'll be difficult if he can't communicate with you.
Colleen