janicebuf
Active member
- Joined
- Jul 6, 2005
- Messages
- 36
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- east amherst
Hi Everyone, I don't know if you remember but I am the one who has the brother that was experiencing bulbar symptoms. Since then, the neuro has said 'possible' als due to our family history. I don't know if anyone can help but he was over last night and to me, it looked like he was at the dentist and still had novacaine. His speech is ok except for the s's and he can swallow. No twitching and his tongue is fine. His problem mainly is his lips, jaw and under his chin. I know 'granny' on this site has blulbar and she was helpful (thanks). I am not looking for you to diagnose him, just looking for people with the same symptoms. The other thing is that he told me he feels a tightness under his chin which has been there for quite a while, and he also was showing me that where his jaw meets his ear and then down towards his chin gets tired at the end of the day. Does this make any sense to anyone? Thanks so much!