kylisa
Distinguished member
- Joined
- Feb 11, 2008
- Messages
- 195
- Reason
- Lost a loved one
- Country
- US
- State
- KY
- City
- Stanford
My mother began having foot drop last July. She had nerve conduction and MRi's of her spine and brain. Nothing showed except the nerve issue in her foot. Since all of those tests, she has progressively gotten worse. She now has labored speech, unsteady gait that requires a cane. She has had numerous falls. I believe she has some mild breathing issues too. We finally took her to a neurosurgeon, after the neurologist she was seeing didn't think our concerns were that important.
The neurosurgeon had my mother do numerous tests like pushing and pulling, raising and lowering her limbs, etc. After the exam, the surgeon told us that she needed to have the EMG and nerve conduction tests that the neurologist hadn't done.
What he dismissed as not serious, the surgeon picked up on every single thing without our pointing it out to her.
At the end of the visit, she told us the best case senario could be any number of things causing the different symptoms my mother is having. She went on to say the worst case senario would be ALS.
I am glad to have found this forum. I am afraid all of her symptoms are classic of ALS.
I have never had any experience with this disease. I don't know a single person who has any realatives that have suffered with ALS. After reading some of the posts, I have come to realize that my mother's neurologist probably has never treated an actual ALS patient. I don't know what the future will bring, but if she is diagnosed with ALS, I hope I can lean on you guys.
The neurosurgeon had my mother do numerous tests like pushing and pulling, raising and lowering her limbs, etc. After the exam, the surgeon told us that she needed to have the EMG and nerve conduction tests that the neurologist hadn't done.
What he dismissed as not serious, the surgeon picked up on every single thing without our pointing it out to her.
At the end of the visit, she told us the best case senario could be any number of things causing the different symptoms my mother is having. She went on to say the worst case senario would be ALS.
I am glad to have found this forum. I am afraid all of her symptoms are classic of ALS.
I have never had any experience with this disease. I don't know a single person who has any realatives that have suffered with ALS. After reading some of the posts, I have come to realize that my mother's neurologist probably has never treated an actual ALS patient. I don't know what the future will bring, but if she is diagnosed with ALS, I hope I can lean on you guys.