Hi Guys,
How are you all? It's been a while since I've posted - I can't believe the time is slipping away. Been involved in helping to plan the Ottawa Walk for ALS. 2 more days until kickoff. I'm very excited about this...
For those of you who remember, my brother was diagnosed with limb onset ALS a little over a year ago. He's doing ok but has lost the use of his arms and abdominal muscles and his legs are very weak now too. His wife has noticed twitching in his throat but he said he doesn't feel it at all.
He does say he feels like he has to clear his throat more often than before - like he cannot clear it well enough. For those with bulbar ALS, did you experience this too? I am just trying to guage whether bulbar symptoms are setting in as well or whether that feeling is a result of the fact that his chest muscles can no longer clear his throat as well (he's lost most of his chest muscles too).
Thanks for any info, as always. I hope you are all doing well and enjoying the (dare I say it) last weeks of summer...
How are you all? It's been a while since I've posted - I can't believe the time is slipping away. Been involved in helping to plan the Ottawa Walk for ALS. 2 more days until kickoff. I'm very excited about this...
For those of you who remember, my brother was diagnosed with limb onset ALS a little over a year ago. He's doing ok but has lost the use of his arms and abdominal muscles and his legs are very weak now too. His wife has noticed twitching in his throat but he said he doesn't feel it at all.
He does say he feels like he has to clear his throat more often than before - like he cannot clear it well enough. For those with bulbar ALS, did you experience this too? I am just trying to guage whether bulbar symptoms are setting in as well or whether that feeling is a result of the fact that his chest muscles can no longer clear his throat as well (he's lost most of his chest muscles too).
Thanks for any info, as always. I hope you are all doing well and enjoying the (dare I say it) last weeks of summer...