Old 03-12-2019, 01:22 PM #1 (permalink)
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Default Sensory Overload

Can any PALS explain to me what the sensory overload feels like? My sister only blink yes, no and maybe now. She cannot use her computer any longer as her one hand she had use of is no longer working. The senses she has, she had previously explained are hyper sensitive. So in a room full of noisy family it causes her anxiety. I want to be able to explain this to friends and family so that they can understand that smaller groups and lower voices makes things easier for her. I honestly don't understand it myself and she can no longer explain. She does have the computer that will do eye gaze but she is resistant and I/we do not push. If anyone can explain, I would greatly appreciate it!
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Old 03-12-2019, 03:58 PM #2 (permalink)
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Default Re: Sensory Overload

There are a lot of individual circumstances that go into that answer. I would explain it to them as it takes a lot of energy to even blink and stay awake (ALS affects metabolism) so the energy that you expend in processing stimuli and information without thinking about it is going to the very basics for her. Does that make sense?

When you have a bad headache, you want to lie down and rest because you are fighting the pain and it's exhausting. She is fighting for her energy full-time.

Best,
Laurie
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Old 03-13-2019, 05:53 AM #3 (permalink)
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Default Re: Sensory Overload

Yes, thank you for your explanation.
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