I think Nikki’s assessment is spot on. The time frame remains an unknown.
One of the problems is that ALS probably encompasses a group of diseases with different causes but a common clinical presentation. A “cure”, if it is ever found, may vary from person to person depending on cause. In the meantime, there have been advances in slowing down disease progression.
I’m not sure we’ll ever hear, “Don’t worry, it’s only ALS”.
I’m encouraged with advances that have been made in controlling HIV/ AIDS. In the 1980s when it first manifested, it was an automatic death sentence. Since then, there are treatments that keep it more or less in check. There are now even reports of two patients who have been “cured”. I realize that’s a very different situation than ALS, but it illustrates the evolution of medical technological advances.