Old 12-01-2018, 02:20 AM #1 (permalink)
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Default My son

Hi all,
My son was diagnosed just over 4 years ago (October 22, 2014) at the age of 22. Sunday will be his 27th birthday. As we with ALS, four years in and things are looking grim.
I was wondering if there are others out there that are in their 20’s and battling this horrible disease? My son is an amazingly strong person, but sometimes that comes at a cost. He doesn’t talk about his disease with anyone. I thought maybe I could find someone who is closer to his age who is also suffering. Not that I want another young person to be living with ALS, not at all, but maybe just to give my son someone to talk to.
Thank you in advance.
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Old 12-01-2018, 03:56 AM #2 (permalink)
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Default Re: My son

I'm sorry about your son, G. He might check out the Young Faces of ALS. They're also on Facebook. There are definitely others in their 20s and he will find some there.

Let us know if there's anything else we can do.

Best,
Laurie
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Old 12-01-2018, 09:21 PM #3 (permalink)
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Default Re: My son

Agree with Laurie. There are many groups on Facebook where he will find young people with ALS.
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Old 12-04-2018, 08:39 AM #4 (permalink)
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Default Re: My son

Hi, I was diagnosed with ALS at 31. I'm in a Facebook group called ALS Under 50. There are many members in the group in their 20s. The group owner is 29 I think, and we recently had a 22 year old join the group. It's a cozy spot to find others in your similar age and life stage who are going through this.
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