familial als

[arlie]

hello out there

my name is arlene-i am a religous jewish middle aged woman

i was diagnosed at sunnybrook hospital[toronto] in october with familial als

my speech is affected and i would like to talk to people who have the same symptom or familial als-my brothers als started in his legs-my father with his speech

[anne]

Hi Arlene. Welcome to the forum. Everyone on this forum are very helpful.

My mother passed away in September /07 with motorneuron disease with bulbar symptoms. She too was diagnosed at Sunnybrook Hospital. She was under the care of Dr. Zinman and Dr. Webster. I am certain you met Myrna Moore. She is very supportive and has much information to offer. My mom started off having hoarseness in her voice and then it became slurred, she had problems with drooling and swallowing. She had problems with phelgm. Unfortunately this past June she started getting short of breath on any type of exertion. Everyone progresses at different rates. Take one day at a time and deal with the situations as they occur.

God Bless. Anne

[arlie]

so sorry about your mother-arlene

[Al]

Welcome arlie. Sorry about the diagnosis. I have limb onset and go to Sunnybrook as well. Hope we can be of some help along the way.
AL.