Old 07-09-2018, 06:45 PM #1 (permalink)
karzy81's Avatar
New Member
 
Join Date: 2017
City: Thornhill
State: Ontario
Country: Can
Diagnosed: 03/2018
Interest: I am a family member of someone with ALS/MND.
Posts: 28
karzy81 is on a distinguished road
karzy81 karzy81 is offline
New Member
karzy81's Avatar
Join Date: 2017
City: Thornhill
State: Ontario
Country: Can
Diagnosed: 03/2018
Interest: I am a family member of someone with ALS/MND.
Posts: 28
karzy81 is on a distinguished road
Default Pemf

Asking for any information on PEMF treatment. Thanks.
karzy81 is offline   Reply With QuoteReply With Quote
Old 07-09-2018, 08:58 PM #2 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,659
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is online now
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,659
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: Pemf

don't bother
affected is online now   Reply With QuoteReply With Quote
Old 07-10-2018, 02:02 AM #3 (permalink)
Atsugi's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,988
Atsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond repute
♥ Atsugi Atsugi is offline
Extremely Helpful Member
Forum Moderator

Atsugi's Avatar
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,988
Atsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond repute
Default Re: Pemf

PEMF = total scam. Hard to believe our society allows that kind of snake oil.


a) PEMF claims to treat all kinds of diseases, including cancer.
b) It supposedly works by matching the Earth's natural electro-magnetic field. (Then why doesn't the Earth's EM field cure these diseases?)
c) They say that all diseases are caused by "negative" energy exuded by your attitude.
d) The glowing reviews by hundreds of satisfied customers all have the same not-quite-right punctuation and spelling mistakes.


Stay away from PEMF.
Atsugi is offline   Reply With QuoteReply With Quote
Thanks from
bkite (07-11-2018)
Old 07-10-2018, 02:39 AM #4 (permalink)
karzy81's Avatar
New Member
 
Join Date: 2017
City: Thornhill
State: Ontario
Country: Can
Diagnosed: 03/2018
Interest: I am a family member of someone with ALS/MND.
Posts: 28
karzy81 is on a distinguished road
karzy81 karzy81 is offline
New Member
karzy81's Avatar
Join Date: 2017
City: Thornhill
State: Ontario
Country: Can
Diagnosed: 03/2018
Interest: I am a family member of someone with ALS/MND.
Posts: 28
karzy81 is on a distinguished road
Default Re: Pemf

Thanks. My dad did one free session and his fasiculations seemed to be milder at the time. I guess my attitude is: if it canít hurt then it can only help. We arenít paying because a friend does it so what do we really have to lose?
karzy81 is offline   Reply With QuoteReply With Quote
Old 07-10-2018, 03:26 AM #5 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Pemf

Um, I would challenge the idea PEMF "can't hurt" (as well as the idea that things only hurt or help). We have no flippin' idea what trauma to nerves PEMF may cause.

What we do know is that accumulated trauma from toxins, injuries, possibly certain electrical exposure types, plays a role in who gets ALS. We know that the nerves are a battery and when muscles are overused in ALS, progression gets faster for some period of time.

Nerves control muscles via electrical impulses (think about an EMG that stimulates muscles to move), and an avowed goal of PEMF is to "stimulate neurons." In ALS, stimulating motor neurons artificially could very well cause them to wear out faster. No way I'd do PEMF (and like some others here, as a non-PALS, I have had TENS for pain so I'm not anti-electricity).

And yes, I've seen the papers about the possibility that PEMF helped cell lines mimicking other CNS disorders in vitro to self-repair. Those are not cells in actual people, let alone PALS.
lgelb is offline   Reply With QuoteReply With Quote
Old 07-10-2018, 04:35 AM #6 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,265
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,265
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: Pemf

Decreasing fasciculations are not always a good thing in ALS in my experience. No twitching sounds good but sometimes it happens because the muscle can’t twitch or is less able to.
Nikki J is offline   Reply With QuoteReply With Quote
Old 07-10-2018, 07:20 AM #7 (permalink)
Atsugi's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,988
Atsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond repute
♥ Atsugi Atsugi is offline
Extremely Helpful Member
Forum Moderator

Atsugi's Avatar
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,988
Atsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond repute
Default Re: Pemf

On the other hand, my personal belief is that a PALS can do whatever he wants.


If he likes it, perhaps it:
A) is enjoyable.
B) makes him feel proactive.
C) gives him hope.


If my PALS wanted to bench press bars of radioactive uranium, I'd happily find a way for her to do it.
Atsugi is offline   Reply With QuoteReply With Quote
Thanks from
azgirl (07-11-2018)
Old 07-10-2018, 08:13 AM #8 (permalink)
karzy81's Avatar
New Member
 
Join Date: 2017
City: Thornhill
State: Ontario
Country: Can
Diagnosed: 03/2018
Interest: I am a family member of someone with ALS/MND.
Posts: 28
karzy81 is on a distinguished road
karzy81 karzy81 is offline
New Member
karzy81's Avatar
Join Date: 2017
City: Thornhill
State: Ontario
Country: Can
Diagnosed: 03/2018
Interest: I am a family member of someone with ALS/MND.
Posts: 28
karzy81 is on a distinguished road
Default Re: Pemf

Haha I feel the same way. My dad letís me make the decisions so I wanted some input before we continue. I consulted with his neurologist but we have yet to hear back yet. If there is a chance that it is harmful I would rather steer clear personally
karzy81 is offline   Reply With QuoteReply With Quote
Old 07-10-2018, 03:49 PM #9 (permalink)
KarenNWendyn's Avatar
Senior Member
 
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 852
KarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud of
KarenNWendyn KarenNWendyn is offline
Senior Member

KarenNWendyn's Avatar
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 852
KarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud of
Default Re: Pemf

Mikeís comment that ďThe glowing reviews by hundreds of satisfied customers all have the same not-quite-right punctuation and spelling mistakesĒ makes me consider two possibilities:

a) One person wrote all the glowing reviews, or
b) People who try this alleged therapy have not been properly educated in spelling and grammar.

So, if you feel inclined to try this therapy, please consult an English teacher ASAP.
KarenNWendyn is offline   Reply With QuoteReply With Quote
The Following 2 Users Say Thank You to KarenNWendyn For This Useful Post:
GregK (07-10-2018), wishmobbing (07-10-2018)
Old 07-10-2018, 06:45 PM #10 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Pemf

I think most of us CALS, with more mobility and energy to do research than our PALS, have considered ourselves gatekeepers against notions more likely to do more harm than good. My husband certainly expected that of me. I'm not talking about telling my mom to let my mildly diabetic dad have some ice cream (which I do), but about mistakes that could have a dramatic effect on the "battery life" left.

Best,
Laurie
lgelb is offline   Reply With QuoteReply With Quote
Old 07-10-2018, 10:25 PM #11 (permalink)
karzy81's Avatar
New Member
 
Join Date: 2017
City: Thornhill
State: Ontario
Country: Can
Diagnosed: 03/2018
Interest: I am a family member of someone with ALS/MND.
Posts: 28
karzy81 is on a distinguished road
karzy81 karzy81 is offline
New Member
karzy81's Avatar
Join Date: 2017
City: Thornhill
State: Ontario
Country: Can
Diagnosed: 03/2018
Interest: I am a family member of someone with ALS/MND.
Posts: 28
karzy81 is on a distinguished road
Default Re: Pemf

I guess for me, the deciding factor has nothing to with the efficacy of the drug it is strictly based on its safety. Our neurologist wrote back and said he had to look it up when I mentioned it because he hadnít heard of it. He actually said he doesnít recommend treatments that donít have evidence of benefits (especially when the potential risks are not well known). I wish there was more information.
karzy81 is offline   Reply With QuoteReply With Quote
Old 07-10-2018, 10:33 PM #12 (permalink)
GregK's Avatar
Very Helpful Member
Forum Moderator
 
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,687
GregK has disabled reputation
♥ GregK GregK is offline
Very Helpful Member
Forum Moderator

GregK's Avatar
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,687
GregK has disabled reputation
Default Re: Pemf

All the information you need is in this one sentance:
It doesn't work.
GregK is offline   Reply With QuoteReply With Quote
Old 07-11-2018, 12:53 PM #13 (permalink)
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,706
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,706
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: Pemf

I looked into this when a friend was conned into buying one. She invited many people to her home and brought it to me to test it on my knee and shoulder. I let her do it. Nothing.

I did some research and later found that she was involved in a multi-level marketing scheme that was designed to pressure people in pain to try the technology. She ended up returning the unit, because it helped nobody....aside from the initial placebo effect that many of her friends experienced on the first try. She had to pay a restocking fee of several hundred dollars. The "system" cost thousands.

If it actually worked, all the PTs would be using it.

I think time and money is better off spent of selective supplements and massages. Just my opinion.
KimT is offline   Reply With QuoteReply With Quote
Reply

Tags
information, treatment


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
PEMF for pain? KimT General Discussion About ALS/MND 8 03-18-2018 02:11 PM
PEMF Therapy Mtzu General Discussion About ALS/MND 3 03-01-2016 04:08 PM


All times are GMT -5. The time now is 05:30 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016