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Ed Par

New member
Joined
Jan 8, 2018
Messages
7
Reason
PALS
Diagnosis
09/2017
Country
CA
State
Ontario
City
Peterborough
Just got finished reading a chapter in this book ,about dealing with ALS. One sections says in order to drive and be covered ins. Company must be notified. Has anyone had a problem with this. I've never been told or heard of this , just did a 27 hr. Trip back from Florida to Ontario. Anyone have issues getting ins. When they where first told they had ALS. Thanks. Ed
 
Ed

My question is why would you want to run out and tell them? People in general, let alone insurance companies, don't understand this disease and how different we all can be. Some may be driving 2 - 3 years after diagnosis, where others may have already quit driving. Here in the US, if the Dept. of Motor Vehicles, finds out, they have been known to take the license

I would say that while you can, travel as much as you can or want. You just need to use the same common sense that you would use in your everyday life, you will get tired sooner than others and will to take breaks or stop sooner for shorter trips each day.

Good luck and have fun traveling.
 
Ditto Waldo. People have all kinds of conditions. If you're not required to disclose something as a condition of coverage or employment (as might be the case with commercially-licensed truck drivers, for instance), I would not.

Bear in mind some of these ALS books are ancient, naïve, or both.
 
I drive better than 90% of the people in Florida. There are some dangerous people on the road, but I'm not one of them. When I can no longer drive safely, I'll stop.
 
Yeap. As a rule facing any sort of administration in an unusual situation I think it best to avoid lying but also never answer the questions they don’t ask.
ML
 
Kim T , I know exactly what you mean . We've stayed closed to Naples the last 4 winters . The avg. age is likely 75-80 and their the good drivers the rest of them are busy texting and driving.
 
Ed, I love Naples. I'm on the Atlantic side and can see the ocean but the water is TOO COLD AND ROUGH! I love floating in the Gulf and always took a week in the Summer to stay on the West coast of FL. One of my favorite places is Lido Key. Winters are very crowded over there and the traffic is pretty bad. Daytona is only full of traffic during Speed Weeks.
 
My husband drove for a year post Dx. We stopped with the long distance stuff after he as diagnosed. Never thought of informing insurance or DMV. When it felt unsafe, he stopped.
 
You are in Canada and I am in the US, so the legal and insurance requirements may differ. Given that, I will share with you what I did.

I discussed with my nerologist that I wanted to drive as long as I safely could, but recognized I might not be the best judge of when to give up driving.

He (strongly) suggested that I be tested by a specialist organization to ensure I was still safe to drive.

This wound up being a 4.5 hour battery of tests. I was tested for vision, cognitive ability, coordination, and strength. This was followed by a driving test.

Fortunately, I passed. The test was very tiring and cost over $600 (not paid for by insurance). But, the result of the test provided quantitative evidence that I am still safe to drive.

I plan to retake this test periodically to ensure that I am safe to drive. In the US, and Colorado specifically, passing this specific test means that I do not need to declare any disability to the Division of Motor Vehicles, even though I showed up for my license renewal in my wheelchair!

Steve
 
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