niteangel2
New member
- Joined
- Nov 28, 2007
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- TX
- City
- Azle
Glad I found this site - I've been lurking, but just joined yesterday. You are all so brave and I just think you are all amazing. I am a 38 year old female with 2 teenage sons. I have been having some troubling symptoms for a couple of weeks and have a dr appt tomorrow morning. I know he's going to dismiss my symptoms, but I need a referrel from him for a neurologist.
I was hoping you would help me with a couple of questions on ALS. I've looked around on the net, but can't come up with a specific answer. I see something different every place I go and don't know where else to look.
1. A couple of weeks ago I started having muscle twitches all over my body, but mostly in my feet and legs while sitting or lying down. They have slowed down quite a bit and I don't really have them nearly as much in my feet or legs, although sometimes I still feel a little 'vibration' feeling. In ALS, do twitches come and go or do they come and stay?
2. Is it possible to build muscle strength with ALS? I've been wearing myself out with worry and while I haven't done any exercises in years, I decided I needed to see if I was getting weaker. So, started with 10 'boy' push-ups a day and in a couple of weeks I'm up to 20. Started doing sit-ups and I'm up to about 50 a day.
I keep testing myself trying to figure out what I think, but it's hard to test when you don't know the answers to the test! I've read symptoms from can't raise toes (I can), can't stand on heels or balls of feet (I can), etc and it's making me nuts. I'm constantly looking at my tongue in the mirror and it just lays there - but I'm pretty sure I've strained it because it hurts now and I keep having stabbing pains in it.I haven't fallen/stumbled and I'm not dropping things, but about 2 days before the twitches started I woke up with a weak feeling on my left side which is there some days and gone others, but is still present.
I know I sound like a crazy person and I feel like one, but I can't get over being afraid that I have ALS and I'm not sure what to tell my doctor that is going to make him listen to me. Please forgive the long post - I'm so afraid.
I was hoping you would help me with a couple of questions on ALS. I've looked around on the net, but can't come up with a specific answer. I see something different every place I go and don't know where else to look.
1. A couple of weeks ago I started having muscle twitches all over my body, but mostly in my feet and legs while sitting or lying down. They have slowed down quite a bit and I don't really have them nearly as much in my feet or legs, although sometimes I still feel a little 'vibration' feeling. In ALS, do twitches come and go or do they come and stay?
2. Is it possible to build muscle strength with ALS? I've been wearing myself out with worry and while I haven't done any exercises in years, I decided I needed to see if I was getting weaker. So, started with 10 'boy' push-ups a day and in a couple of weeks I'm up to 20. Started doing sit-ups and I'm up to about 50 a day.
I keep testing myself trying to figure out what I think, but it's hard to test when you don't know the answers to the test! I've read symptoms from can't raise toes (I can), can't stand on heels or balls of feet (I can), etc and it's making me nuts. I'm constantly looking at my tongue in the mirror and it just lays there - but I'm pretty sure I've strained it because it hurts now and I keep having stabbing pains in it.I haven't fallen/stumbled and I'm not dropping things, but about 2 days before the twitches started I woke up with a weak feeling on my left side which is there some days and gone others, but is still present.
I know I sound like a crazy person and I feel like one, but I can't get over being afraid that I have ALS and I'm not sure what to tell my doctor that is going to make him listen to me. Please forgive the long post - I'm so afraid.