Old 05-14-2018, 07:55 AM #1 (permalink)
Member
 
Join Date: 2017
City: ZAGREB
State: Croatia
Country: HR
Diagnosed: 09/2017
Interest: I have been diagnosed with ALS.
Posts: 159
jethro is on a distinguished road
jethro jethro is offline
Member
Join Date: 2017
City: ZAGREB
State: Croatia
Country: HR
Diagnosed: 09/2017
Interest: I have been diagnosed with ALS.
Posts: 159
jethro is on a distinguished road
Default Dizziness and ALS

i came to doctor because of dizziness which started 20 years ago and it reached culmination when i visited neurologyst in 2015. he looked me and sent to psychiatryst (suspicious BIP after dialogue). visited another one looking for second thought, he also sent me to psychiatrist. i did all the things at that time including emng, everything was ok, but dizziness still exists. third one said in 09/2017 you have ALS. still looking for cause of my dizziness. phisically i was full ok all those years, until i got third thought of neurologyst. third neurologyst made emng, liquor tap, blood exam, metals etc... emng was disaster, along with clinical facts. right tenar disappeared, right foot drop, toes curled etc.
maybe i shouldnt search for a third thought?
No kidding, but:
how often dizziness goes with ALS? Dizziness started after car accident in 1997 so i got antiepileptic drugs which i didnt use. Never had epilepsy. can not believe that dizziness which started after very bad brain injury 21 years ago has anything common with ALS. diiziness that i have now throws me to horizontal position immediately after i jump out of bed. i thought it is cause of anterior and posterior muscles, calf etc, but it is not.
Now i am sure that ALS emerged when i was looking for a cause of my (still) unknown disease.

Last edited by jethro : 05-14-2018 at 08:14 AM
jethro is offline  
Old 05-14-2018, 11:02 AM #2 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,896
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,896
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: Dizziness and ALS

I also started experience dizziness about 20 years ago. They did an ENG (different than an EMG) and found I had damage to both vestibular nerves. I was diagnosed with Meniere's disease but I never lost my hearing. My current neuro thinks it is a combination of damaged vestibular damage, a dislocated TMJ, and cervicogenic vertigo. I gave up trying to find out what it was and just made sure I didn't overuse my neck.

I'm a little dizzy every day and some days I am very dizzy. Not a good combination with ALS.

I got so frustrated with it I went to University of Pittsburgh Balance Clinic and say an expert in dizziness (2005.) Back then I was running and had very good balance. Just dizzy. It also felt like my head was going to explode with pressure. He said it was likely a combination of issues, including migraine.

I think strain on the neck can cause dizziness so maybe there is a higher incidence of dizziness in ALS population simply because the neck gets weak. Nobody really knows.
KimT is offline  
Old 05-15-2018, 08:29 AM #3 (permalink)
Member
 
Join Date: 2017
City: ZAGREB
State: Croatia
Country: HR
Diagnosed: 09/2017
Interest: I have been diagnosed with ALS.
Posts: 159
jethro is on a distinguished road
jethro jethro is offline
Member
Join Date: 2017
City: ZAGREB
State: Croatia
Country: HR
Diagnosed: 09/2017
Interest: I have been diagnosed with ALS.
Posts: 159
jethro is on a distinguished road
Default Re: Dizziness and ALS

therapist said that it may be cause of high concentration to balance the body, and that may be the reason why it makes me tired beside als. maybe it is now like that, but jesus, it started 20 years ago when i was just like acrobate. after few months my blood in brain resorbed, so everything was ok. i had SAH trauma, lateralization (right side, which is first affected by ALS), i was blind etcetc...
we have same problem, but different source of issues...
jethro is offline  
Closed Thread

Tags
als, als?, drugs, unknown


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Dizziness? Schmutz General Discussion About PLS 8 07-22-2014 10:37 AM
Dizziness Oregon Native People With ALS - "PALS" 6 05-18-2011 02:50 PM
Dizziness and ALS gregdickerson General Discussion About ALS/MND 14 12-10-2010 12:13 AM
Dizziness kylisa General Discussion About ALS/MND 7 11-19-2008 07:23 PM
Dizziness sweetmozart General Discussion About ALS/MND 4 06-09-2008 04:08 PM


All times are GMT -5. The time now is 08:51 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016