Instances of misdiagnoses?

[Chincoteaguer]

Vincent or anyone;

The whole boat load of other stuff that needs to be ruled out before diagnosis of ALS has been a constant theme even with my wife's two neurologists. My question: do you know of an ALS diagnosis that was reversed after finding something from the boat load that was missed on the original diagnosis.

 

[Nikki J]

Supposedly 10 percent of initial ALS diagnoses prove to be wrong. I think most of them get reversed relatively quickly when the person sees neuromuscular and or has all the tests completed.

I have heard anecdotes of late change of diagnosis. One was someone who ended up having MMN. This is a third hand report

There was someone on this board whose husband had a bulbar diagnosis that eventually was found to be a cancer

We advise a second neuromuscular opinion in part because of this. A second pair of eyes and a second brain looking at the situation help avoid missing something. Most ALS doctors are very thorough in their rule outs