Old 03-24-2018, 04:48 PM #1 (permalink)
Member
 
Join Date: 2012
City: mid
State: west
Country: US
Diagnosed: 01/2012
Interest: I have been diagnosed with ALS.
Posts: 278
mich5 is on a very distinguished roadmich5 is on a very distinguished road
mich5 mich5 is offline
Member
Join Date: 2012
City: mid
State: west
Country: US
Diagnosed: 01/2012
Interest: I have been diagnosed with ALS.
Posts: 278
mich5 is on a very distinguished roadmich5 is on a very distinguished road
Default turning in a hospital bed

is there any way a pals can sleep on their side in a hospital bed and have their cals turn them onto their other side two or three times per night?
mich5 is offline  
Old 03-24-2018, 05:03 PM #2 (permalink)
GregK's Avatar
Very Helpful Member
Forum Moderator
 
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
♥ GregK GregK is offline
Very Helpful Member
Forum Moderator

GregK's Avatar
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
Default Re: turning in a hospital bed

Yep.
They make a fancy wedge system for that.

or you can simply use pillows.
GregK is offline  
Old 03-24-2018, 05:15 PM #3 (permalink)
Member
 
Join Date: 2012
City: mid
State: west
Country: US
Diagnosed: 01/2012
Interest: I have been diagnosed with ALS.
Posts: 278
mich5 is on a very distinguished roadmich5 is on a very distinguished road
mich5 mich5 is offline
Member
Join Date: 2012
City: mid
State: west
Country: US
Diagnosed: 01/2012
Interest: I have been diagnosed with ALS.
Posts: 278
mich5 is on a very distinguished roadmich5 is on a very distinguished road
Default Re: turning in a hospital bed

how does your cals turn you over to the other side?
mich5 is offline  
Old 03-24-2018, 05:18 PM #4 (permalink)
GregK's Avatar
Very Helpful Member
Forum Moderator
 
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
♥ GregK GregK is offline
Very Helpful Member
Forum Moderator

GregK's Avatar
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
Default Re: turning in a hospital bed

The wedge system uses a sliding cloth.

Others just grab and pull. Not especially good for the back.
GregK is offline  
Old 03-24-2018, 05:20 PM #5 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: turning in a hospital bed

Yes, but as a former CALS, sleep was scarce so I would look for other options first.

Depending on your physical capabilities these days, those might include a trapeze or handle(s) attached to the bed frame or side rail, or a more comfortable setup so you could stay on your back or the same side (the right pillow, bed angle and overlay or bolsters all play a role here).

If you opt to try the on-the-back position, the best chance of success is to have a good bed angle for the knees, and to have the hips and feet supported with foam blocks/belt and pressure boots if needed to keep them stable and relieve pressure-causing contact with the bed.

Best,
Laurie
lgelb is offline  
Old 03-24-2018, 05:24 PM #6 (permalink)
GregK's Avatar
Very Helpful Member
Forum Moderator
 
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
♥ GregK GregK is offline
Very Helpful Member
Forum Moderator

GregK's Avatar
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
Default Re: turning in a hospital bed

Do a Google search for Prevalon Turning and Positioning System.
GregK is offline  
Old 03-24-2018, 06:09 PM #7 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: turning in a hospital bed

Prevalon also makes a commonly-used pressure boot, though floppy legs will need something splint-like added for extra stability.
lgelb is offline  
Old 03-24-2018, 06:14 PM #8 (permalink)
GregK's Avatar
Very Helpful Member
Forum Moderator
 
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
♥ GregK GregK is offline
Very Helpful Member
Forum Moderator

GregK's Avatar
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
Default Re: turning in a hospital bed

Quote:
Originally Posted by lgelb View Post
... floppy legs will need something splint-like added for extra stability.
My floppy feet are wedged into a pillow
GregK is offline  
Old 03-24-2018, 07:13 PM #9 (permalink)
wishmobbing's Avatar
Senior Member
 
Join Date: 2017
City: Stuttgart
State: Germany
Country: DE
Diagnosed: 07/2017
Interest: I lost a loved one to ALS/MND.
Posts: 523
wishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to behold
wishmobbing wishmobbing is online now
Senior Member
wishmobbing's Avatar
Join Date: 2017
City: Stuttgart
State: Germany
Country: DE
Diagnosed: 07/2017
Interest: I lost a loved one to ALS/MND.
Posts: 523
wishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to beholdwishmobbing is a splendid one to behold
Default Re: turning in a hospital bed

I'm still not very good at turning my PALS let alone write what the OT tried to teach me. There's good video tutorials on care. Anything with the word "turning in bed" and "kinestetic" could be interesting when doing a YouTube search. Kinesthetic principles have the focus on being comfortable for patient and caregiver, paying attention to how a body and its movement work. All easy in theory, but at 3 a.m. I won't pass as a spokesperson.

Luckily since my PALS got an anti-decubitus mattress (foam) and a dozen positioning pillows (a load of blankets and towels would work just as well) he doesn't need to be turned every 1-4 hours. Sleep deprivation would make for cranky CALS and you'll be better rested, too, if you tweak all the different aspects others already mentioned.

Sweet dreams!
wishmobbing is online now  
Old 03-24-2018, 09:23 PM #10 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,832
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,832
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: turning in a hospital bed

If you have lots of money you can check out the Freedom Bed by Pro Bed.
KimT is offline  
Old 03-24-2018, 09:47 PM #11 (permalink)
GregK's Avatar
Very Helpful Member
Forum Moderator
 
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
♥ GregK GregK is offline
Very Helpful Member
Forum Moderator

GregK's Avatar
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,707
GregK has disabled reputation
Default Re: turning in a hospital bed

Or for a bit less, the HillRom Progressa bed system with a pulmonary mattress
GregK is offline  
Thanks from
KimT (03-25-2018)
Old 03-25-2018, 01:00 AM #12 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: turning in a hospital bed

Continuous lateral rotation mattresses are pretty different than changing sides with one push; the steps between positions are much incrementally smaller.

Besides being really expensive, there is no evidence overall that they are superior to other pressure relief surfaces (which can be as low-tech as foam with the right powered bed frame). And most PALS aren't at high pressure injury risk just by being in bed at night. For PALS who are in bed 24/7, of course, the situation would be different, but most aren't, for long lengths of time.

Powered rotation can also be intrusive and disturbing as muscles weaken, atrophy ensues, balance/center of gravity changes and joints weaken. Think of being out in the ocean and continually being buffeted by small waves. All night.

For keeping a PALS comfortable at night, I would look to another solution first, and we have mentioned several. The bottom line is that "hard and soft support" like foam shapes, pillows, bed angles, etc. positioning can be customized and changed as you progress, and updated during the night if/as needed, but a powered mattress doesn't permit that level of fine-tuning.

As for optimizing circulation and reducing pressure ulcer risk, circulation is improved with passive/active range of motion exercises and massage. Moisture management and hygiene also go a long way toward reducing pressure ulcer risk.

I am not saying the CLRT beds don't benefit anyone, but I wouldn't spend a lot of time and money trying to get one as a first-line bed.
lgelb is offline  
Thanks from
Chincoteaguer (03-28-2018)
Old 03-25-2018, 01:07 AM #13 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: turning in a hospital bed

Greg, I wouldn't keep wedging your feet together into a pillow, a cauldron of heat and moisture, long-term. One alternative to consider is the Prevalon boots tied together through the loops, with a sash or something (to keep the feet at the right distance from each other), with a plastic block or strip attached wherever it needs to be to keep the sole from flopping.
lgelb is offline  
Closed Thread

Tags
bed, cals, night, sleep


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Turning In Bed mariposa13 Tips, Tricks, and Gadgets 3 09-08-2017 07:26 AM
Turning car key BlueandGold Tips, Tricks, and Gadgets 14 05-07-2016 02:32 PM
Turning in bed Alex123 General Discussion About ALS/MND 14 02-01-2016 12:29 PM
turning in bed hjlindley People With ALS - "PALS" 5 05-19-2014 08:14 AM
Turning in bed hjlindley Tips, Tricks, and Gadgets 6 11-21-2013 10:13 AM


All times are GMT -5. The time now is 06:06 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016