Old 03-12-2018, 07:14 AM #1 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 335
Kristina1 has a spectacular aura aboutKristina1 has a spectacular aura aboutKristina1 has a spectacular aura about
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 335
Kristina1 has a spectacular aura aboutKristina1 has a spectacular aura aboutKristina1 has a spectacular aura about
Default low CO2

I know normally the concern is about high CO2 in the blood, but does anyone know if low CO2 results are concerning in ALS?

I was at the ER and among their bloodwork showed a flagged CO2 level of 21. Two weeks ago in my regular in-clinic bloodwork my CO2 was 27. The ER docs had nothing to say but they don't really know anything about ALS. I emailed my neuro to make sure she's seen the results and find out if it's anything I should be concerned about.

In the meantime I thought I'd ask here.
Kristina1 is offline  
Old 03-12-2018, 07:19 AM #2 (permalink)
tripete's Avatar
Senior Member
 
Join Date: 2014
City: Lancaster
State: PA
Country: US
Diagnosed: 12/2014
Interest: I have been diagnosed with ALS.
Posts: 919
tripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud of
tripete tripete is online now
Senior Member
tripete's Avatar
Join Date: 2014
City: Lancaster
State: PA
Country: US
Diagnosed: 12/2014
Interest: I have been diagnosed with ALS.
Posts: 919
tripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud of
Default Re: low CO2

i really dont know except that blood test very so much. i like your unicorn
tripete is online now  
Old 03-12-2018, 07:28 AM #3 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 335
Kristina1 has a spectacular aura aboutKristina1 has a spectacular aura aboutKristina1 has a spectacular aura about
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 335
Kristina1 has a spectacular aura aboutKristina1 has a spectacular aura aboutKristina1 has a spectacular aura about
Default Re: low CO2

thanks! it makes me happy!
Kristina1 is offline  
Old 03-12-2018, 07:53 AM #4 (permalink)
wishmobbing's Avatar
Member
 
Join Date: 2017
City: Stuttgart
State: Germany
Country: DE
Diagnosed: 07/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 402
wishmobbing is a name known to allwishmobbing is a name known to allwishmobbing is a name known to allwishmobbing is a name known to allwishmobbing is a name known to allwishmobbing is a name known to all
wishmobbing wishmobbing is online now
Member
wishmobbing's Avatar
Join Date: 2017
City: Stuttgart
State: Germany
Country: DE
Diagnosed: 07/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 402
wishmobbing is a name known to allwishmobbing is a name known to allwishmobbing is a name known to allwishmobbing is a name known to allwishmobbing is a name known to allwishmobbing is a name known to all
Default Re: low CO2

Your unicorn makes me happy, too!
No clue about the CO2, hope your neuro answers quickly.
wishmobbing is online now  
Old 03-12-2018, 08:21 AM #5 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,135
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,135
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: low CO2

I don’t think it is concerning re ALS. Depending on the lab that is a point or two out of range Were the other values off too? You didn’t say what took you to the ED ( nor do you need to share) but it might be related to that issue

Always good to check with your neuro though
Nikki J is offline  
Old 03-12-2018, 09:55 AM #6 (permalink)
KarenNWendyn's Avatar
Senior Member
 
Join Date: 2017
City: Talent
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 760
KarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud of
KarenNWendyn KarenNWendyn is online now
Senior Member

KarenNWendyn's Avatar
Join Date: 2017
City: Talent
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 760
KarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud of
Default Re: low CO2

Low CO2 usually represents hyperventilation. So probably not from ALS.
I like the unicorn too
KarenNWendyn is online now  
Old 03-12-2018, 11:07 AM #7 (permalink)
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,637
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,637
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: low CO2

My CO2 was low and it was because I was hyperventilating. The next test it was normal. The third test it was also normal.
KimT is offline  
Old 03-12-2018, 11:54 AM #8 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 335
Kristina1 has a spectacular aura aboutKristina1 has a spectacular aura aboutKristina1 has a spectacular aura about
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 335
Kristina1 has a spectacular aura aboutKristina1 has a spectacular aura aboutKristina1 has a spectacular aura about
Default Re: low CO2

Ok thanks, I was certainly anxious due to discomfort in the hospital so hyperventilation makes sense. Neuro emailed me back, was not concerned, seems all is well.
Kristina1 is offline  
Thanks from
wishmobbing (03-12-2018)
Old 03-12-2018, 12:12 PM #9 (permalink)
swalker's Avatar
Senior Member
 
Join Date: 2014
City: Vail
State: Colorado
Country: US
Diagnosed: 07/2014
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 921
swalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to behold
swalker swalker is offline
Senior Member
swalker's Avatar
Join Date: 2014
City: Vail
State: Colorado
Country: US
Diagnosed: 07/2014
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 921
swalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to behold
Default Re: low CO2

My last two Arterial Blood Gas (ABG) tests have shown that I have low CO2 (in the same range as yours).

The pulmonologist, neurologist, general practitioner, and respiratory therapist have all said it is because I am consistently hyperventilating.

My breathing is pretty shallow (FVC is around 20%) but I breathe faster than typical with even slight exertion. The effort it takes to get to the lab and get my wrist exposed to do the ABG apparently causes me to hyperventilate.

All the doctors have reassured me that a low CO2 is nothing to worry about. In fact, they tell me it is a great sign that I can clear CO2 as well as I can.

Steve
swalker is offline  
Thanks from
wishmobbing (03-12-2018)
Closed Thread

Tags
als, clinic


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


All times are GMT -5. The time now is 07:04 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016