Hi All,
I feel as if I've been run over by a truck... I'll tell my story.
Sometime Last July 2004 I woke up one morning, and while stretching my legs, pulled by left calf muscle (So I thought.) I immediatly started walking with a slight limp. September 2004 I was still walking with a limp, so I went to see my GP. He did some stretching of my left leg, and as I felt some pain in the Quad Muscle (Felt like bad cramps) I was told, I more that likely pulled my Quad, so give it about 12 wks to heal. December 2004 I was getting worse, Quad Muscle was wasting, and I started falling on the ICE, so I went back to my GP who then refered my to a Neurologist. March (2005) Saw the Nerologist who did NCV/EMG tests. Abnormal findings, and so I was admitted to Trillium (Mississauga) hospital for suspected Neuropathy. At this point my Left leg was almost useless, and I could no longer move my Right Leg below the ankle. April 2005 Now a patient at Trillium Hospital, MRI of the C-Spine are normal, MRI of the Brain and neck is normal. Results of Lumbar Puncture showed elevated CSF Protein count. Results of sural nerve biopsy showed mild Axonal loss, no nerve demyelination. I was given 400cc's IVIG for 5 days. May 2005 Still no improvement, and still in the hospital. Given a second round of IVIG for 5 days. At this point, I could barely move my right leg, and my left leg was like a log. Two fingers in my right arm, started curling. and I was completely wheelchair bound, unable to stand. I am refered to St. Mikes hospital, to a specialist Dr. G. Midroni. June 2005 I have lost the complete use of both my legs, and my arms, chest, and ab muscles have suffered significant muscle loss. Dr. Midroni does some more testing, and on June 24, 2005 Tells me, he is diagnosing possible ALS. Some factors still bother him, so he would like me to start treatment with CYTOXAN, as well and I have to do a Pulmonary exam, as I am now having a hard time breathing. All I can say is wow....
I am 36 Yrs old (Just celebrated my 36'th B-Day April 30'th) and this news has just devastated me... I'm not quite sure what to do next.
Will continue to update this post, and thanks for allowing me the time to cry on your shoulders.
God Bless.
David
I feel as if I've been run over by a truck... I'll tell my story.
Sometime Last July 2004 I woke up one morning, and while stretching my legs, pulled by left calf muscle (So I thought.) I immediatly started walking with a slight limp. September 2004 I was still walking with a limp, so I went to see my GP. He did some stretching of my left leg, and as I felt some pain in the Quad Muscle (Felt like bad cramps) I was told, I more that likely pulled my Quad, so give it about 12 wks to heal. December 2004 I was getting worse, Quad Muscle was wasting, and I started falling on the ICE, so I went back to my GP who then refered my to a Neurologist. March (2005) Saw the Nerologist who did NCV/EMG tests. Abnormal findings, and so I was admitted to Trillium (Mississauga) hospital for suspected Neuropathy. At this point my Left leg was almost useless, and I could no longer move my Right Leg below the ankle. April 2005 Now a patient at Trillium Hospital, MRI of the C-Spine are normal, MRI of the Brain and neck is normal. Results of Lumbar Puncture showed elevated CSF Protein count. Results of sural nerve biopsy showed mild Axonal loss, no nerve demyelination. I was given 400cc's IVIG for 5 days. May 2005 Still no improvement, and still in the hospital. Given a second round of IVIG for 5 days. At this point, I could barely move my right leg, and my left leg was like a log. Two fingers in my right arm, started curling. and I was completely wheelchair bound, unable to stand. I am refered to St. Mikes hospital, to a specialist Dr. G. Midroni. June 2005 I have lost the complete use of both my legs, and my arms, chest, and ab muscles have suffered significant muscle loss. Dr. Midroni does some more testing, and on June 24, 2005 Tells me, he is diagnosing possible ALS. Some factors still bother him, so he would like me to start treatment with CYTOXAN, as well and I have to do a Pulmonary exam, as I am now having a hard time breathing. All I can say is wow....
I am 36 Yrs old (Just celebrated my 36'th B-Day April 30'th) and this news has just devastated me... I'm not quite sure what to do next.
Will continue to update this post, and thanks for allowing me the time to cry on your shoulders.
God Bless.
David