Old 01-13-2018, 04:55 PM #1 (permalink)
jethro's Avatar
Member
 
Join Date: 2017
City: ZAGREB
State: Croatia
Country: HR
Diagnosed: 09/2017
Interest: I have been diagnosed with ALS.
Posts: 107
jethro is on a distinguished road
jethro jethro is offline
Member
jethro's Avatar
Join Date: 2017
City: ZAGREB
State: Croatia
Country: HR
Diagnosed: 09/2017
Interest: I have been diagnosed with ALS.
Posts: 107
jethro is on a distinguished road
Default Carbohydrate aditives

as i read here, everyone has it's own protocol which includes (mostly) cbd, proteins, vitamins, minerals etc.
now i "celebrate" 2,5 years of als. without wchair and any kind of help tools (except knee pad which is MUST), but also without few pounds and without power.
lost job and friends, have no family. can not wake up before 11:00. too weak. no aim to leave my bed.
just sleep (12-15h/day and gym app 2,5 hours/day)
thought about taking some carbohydrates (not simple "fast"&empty calories, but something like Vitargo+electrolite, vitargo carboloader etc...
just have no power to stand up from bed. i'd rather say it is "why should i wake up" than "cannot move". of course, it can be kind of depression. i go to gym 5/7, dont lift big weight, but i walk normaly since i started to go 5/7days in gym.
i need c-hydrates to fill up mitochondria ("energy plants" in cells). i noticed that nobody includes c-hydrates. also, i intend to add lithium orotat to "jethro's protocol". anybody has the same thoughts?
also, q10 is widely in use. do you know that liver/organism can not absorb more than 30mg of q10 at once? if you take 100, 200 and more mg, it is just like throwing salt in ocean.
you must take q10 with some oil to disolve it! than it makes a sence to take more than 30mg.
jethro is offline  
Old 01-13-2018, 10:55 PM #2 (permalink)
Vincent's Avatar
Senior Member
 
Join Date: 2013
City: Barrie
State: ON
Country: CA
Diagnosed: 08/2014
Interest: I have been diagnosed with ALS.
Posts: 745
Vincent is a name known to allVincent is a name known to allVincent is a name known to allVincent is a name known to allVincent is a name known to allVincent is a name known to all
Vincent Vincent is offline
Senior Member
Vincent's Avatar
Join Date: 2013
City: Barrie
State: ON
Country: CA
Diagnosed: 08/2014
Interest: I have been diagnosed with ALS.
Posts: 745
Vincent is a name known to allVincent is a name known to allVincent is a name known to allVincent is a name known to allVincent is a name known to allVincent is a name known to all
Default Re: Carbohydrate aditives

I am a big fan of carbohydrates. There was a small study done a few years back that showed carbs to be of greater benefit than protein or fats. They also recommended 150% of maintenance calories, high in carbs. It is a small study but I decided to go with it. I am 3 1/2 years in and can still walk and wood carve. I don't know if I am just progressing slowly or if the diet helps, but I'm not changing anything.

Vincent
Vincent is offline  
Thanks from
ShiftKicker (01-13-2018)
Closed Thread

Tags
bed, depression, family, hours, lift, lithium, oil, power, sleep, vitamins


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


All times are GMT -5. The time now is 02:32 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016