Larry, as long as she has the mobility to do so, she could suction herself. I’ve known of PALS that do, so while you need trained, she could still suction herself even with the trach.
As to travel, as long as her mobility permits, you can travel. It takes a bit more forethought. And at least for us, mucous plugs don’t occur all that often, they’re actually very rare. While he may need suctioned, most times it’s loose and comes out easily. Days vary. The vent is very portable.
Also there is no reason she could still not sew as long as she has the mobility.
Adding a vent does not confine her to bed or wheelchair unless she already is. It also does not confine her to home.
It does bring a whole new set of things to worry about/care for, but many people go to work etc. Anyone can be trained to put a tube back on, and truly anyone can be trained to suction. Our daughter learned at 16 when Brian was vented. I could have taught her much younger. I’ve trained many people, even though most are not around to actually help. If one or two of the women were willing to learn, they could be easily taught.
That said, I also wanted to remind you to check with your local hospices. Here where I live, they won’t take on a patient on a vent, unless it’s to do a death wean. Everywhere is different though. I mention this because at some point you may definitely need the help.
I’m not trying to convince you one way or the other, I’m just trying to remove thoughts that may not be true or alíviate worries that can be unfounded in reality. Most is based upon her current abilities that over time will change, but it doesn’t mean they change immediately upon being trached.
After being trached, he attended outdoor rugby games, and indoor concerts, went to church weekly and anywhere we could get his power chair. We carried a portable ramp with us for times when we’d encounter a step or two. She will only be as confined as she chooses to be until she loses more abilities.
All that said, do I struggle as a caregiver, yes I do. However not long ago I asked Brian “knowing what you know now, would you still choose to trach?” His answer was yes. Someone else might say no. I’m not sure I could personally do it, and would probably choose against it for myself.
And there in is the biggest question, what does your wife want? That is the most important question and trumps anything I or anyone else has said. It has to be her choice. If her choice is yes, then you need to be totally on board as well because it is a huge commitment on your part.
I wish you all the best as you consider your options
Hugs,
Sue