Old 11-12-2017, 09:48 AM #1 (permalink)
Firefighter58's Avatar
Member
 
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 403
Firefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really nice
Firefighter58 Firefighter58 is offline
Member
Firefighter58's Avatar
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 403
Firefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really nice
Default Neurologist check up

Hello folks, on Friday had my 6 month checkup with my neurologist, no progression that is two checkup in a row now, a year now with no progression. Made me and the neurologist happy.

Discussed removing the Peg but because I take my terrible tasting meds and vitamins with it I decided to keep it.

Next appointment is next May, hopefully with the same results.

I have had no improvements though, still canít talk and use a walker or wheelchair to get around.
Al
Firefighter58 is offline   Reply With QuoteReply With Quote
The Following 4 Users Say Thank You to Firefighter58 For This Useful Post:
affected (11-12-2017), KateEmerson (11-13-2017), KimT (11-13-2017), worrieddaughter77 (11-12-2017)
Old 11-12-2017, 11:11 AM #2 (permalink)
KarenNWendyn's Avatar
Member
 
Join Date: 2017
City: Talent
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 153
KarenNWendyn has a spectacular aura aboutKarenNWendyn has a spectacular aura about
KarenNWendyn KarenNWendyn is offline
Member

KarenNWendyn's Avatar
Join Date: 2017
City: Talent
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 153
KarenNWendyn has a spectacular aura aboutKarenNWendyn has a spectacular aura about
Default Re: Neurologist check up

Glad for your long plateau. That’s what most of us want, though hopefully before too much bad stuff sets in. Wishing you another stable 6 months.
KarenNWendyn is offline   Reply With QuoteReply With Quote
Thanks from
Firefighter58 (11-14-2017)
Old 11-12-2017, 11:33 AM #3 (permalink)
Senior Member
 
Join Date: 2016
City: Pittsburgh
State: PA
Country: US
Diagnosed: 07/2007
Interest: I am a caregiver for someone with ALS/MND.
Posts: 931
Narrowminded is a name known to allNarrowminded is a name known to allNarrowminded is a name known to allNarrowminded is a name known to allNarrowminded is a name known to allNarrowminded is a name known to all
Narrowminded Narrowminded is offline
Senior Member
Join Date: 2016
City: Pittsburgh
State: PA
Country: US
Diagnosed: 07/2007
Interest: I am a caregiver for someone with ALS/MND.
Posts: 931
Narrowminded is a name known to allNarrowminded is a name known to allNarrowminded is a name known to allNarrowminded is a name known to allNarrowminded is a name known to allNarrowminded is a name known to all
Default Re: Neurologist check up

Congrats Firefighter on the awesome news!

hugs,

sue
Narrowminded is offline   Reply With QuoteReply With Quote
Thanks from
Firefighter58 (11-14-2017)
Old 11-12-2017, 02:12 PM #4 (permalink)
worrieddaughter77's Avatar
New Member
 
Join Date: 2017
City: S
State: IL
Country: USA
Diagnosed: 10/2017
Interest: I am a family member of someone with ALS/MND.
Posts: 60
worrieddaughter77 is on a distinguished road
worrieddaughter77 worrieddaughter77 is offline
New Member
worrieddaughter77's Avatar
Join Date: 2017
City: S
State: IL
Country: USA
Diagnosed: 10/2017
Interest: I am a family member of someone with ALS/MND.
Posts: 60
worrieddaughter77 is on a distinguished road
Default Re: Neurologist check up

Congratulations Al! Do you use bipap at all yet? It is amazing how unpredictable this disease is. Wishing you another 6 months of plateau!
worrieddaughter77 is offline   Reply With QuoteReply With Quote
Thanks from
Firefighter58 (11-14-2017)
Old 11-13-2017, 08:39 AM #5 (permalink)
Firefighter58's Avatar
Member
 
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 403
Firefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really nice
Firefighter58 Firefighter58 is offline
Member
Firefighter58's Avatar
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 403
Firefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really nice
Default Re: Neurologist check up

No bipad, to tell you the truth, I donít know what a bipad is. The neurologist was quite surprised that I still sleep with one pillow.
Al
Firefighter58 is offline   Reply With QuoteReply With Quote
Old 11-13-2017, 09:51 AM #6 (permalink)
Member
 
Join Date: 2011
City: Sandy Springs
State: Georgia
Country: US
Diagnosed: 10/2010
Interest: I have been diagnosed with ALS.
Posts: 480
frankb is just really nicefrankb is just really nicefrankb is just really nicefrankb is just really nice
frankb frankb is offline
Member
Join Date: 2011
City: Sandy Springs
State: Georgia
Country: US
Diagnosed: 10/2010
Interest: I have been diagnosed with ALS.
Posts: 480
frankb is just really nicefrankb is just really nicefrankb is just really nicefrankb is just really nice
Default Re: Neurologist check up

Congrats. No progression is even better than slow progression !
frankb is offline   Reply With QuoteReply With Quote
Thanks from
Firefighter58 (11-14-2017)
Old 11-13-2017, 02:09 PM #7 (permalink)
bigmark1954's Avatar
Senior Member
 
Join Date: 2014
City: taylorsvill
State: utah
Country: US
Diagnosed: 01/2014
Interest: I have been diagnosed with ALS.
Posts: 954
bigmark1954 is just really nicebigmark1954 is just really nicebigmark1954 is just really nicebigmark1954 is just really nicebigmark1954 is just really nice
bigmark1954 bigmark1954 is offline
Senior Member
bigmark1954's Avatar
Join Date: 2014
City: taylorsvill
State: utah
Country: US
Diagnosed: 01/2014
Interest: I have been diagnosed with ALS.
Posts: 954
bigmark1954 is just really nicebigmark1954 is just really nicebigmark1954 is just really nicebigmark1954 is just really nicebigmark1954 is just really nice
Default Re: Neurologist check up

Quote:
Originally Posted by Firefighter58 View Post
No bipad, to tell you the truth, I donít know what a bipad is. The neurologist was quite surprised that I still sleep with one pillow.
Al
Great news, You are slow progression! BiPap will come as your breathing is affected. It is similar to Cpap but it allows for less resistance on exhaling. You can also bleed 02 into it.
bigmark1954 is offline   Reply With QuoteReply With Quote
Thanks from
Firefighter58 (11-14-2017)
Old 11-13-2017, 06:59 PM #8 (permalink)
Very Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 1,952
KimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud of
KimT KimT is offline
Very Helpful Member

Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 1,952
KimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud of
Default Re: Neurologist check up

Al, That's the best news I've heard all day!!!!! I'm so happy for you.

There are cases out there where a PALS progression just stops. Keep taking the same supplements and eat whatever it is that you've been eating!
KimT is offline   Reply With QuoteReply With Quote
Thanks from
Firefighter58 (11-14-2017)
Old 11-13-2017, 07:26 PM #9 (permalink)
LizF's Avatar
New Member
 
Join Date: 2016
City: Victoria
State: BC
Country: CA
Diagnosed: 06/2016
Interest: I have been diagnosed with ALS.
Posts: 56
LizF is on a very distinguished road
LizF LizF is offline
New Member

LizF's Avatar
Join Date: 2016
City: Victoria
State: BC
Country: CA
Diagnosed: 06/2016
Interest: I have been diagnosed with ALS.
Posts: 56
LizF is on a very distinguished road
Default Re: Neurologist check up

Congratulations Al! That's fantastic news xo
LizF is offline   Reply With QuoteReply With Quote
Thanks from
Firefighter58 (11-14-2017)
Old 11-14-2017, 11:30 AM #10 (permalink)
Firefighter58's Avatar
Member
 
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 403
Firefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really nice
Firefighter58 Firefighter58 is offline
Member
Firefighter58's Avatar
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 403
Firefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really niceFirefighter58 is just really nice
Default Re: Neurologist check up

I still eat in the regular manner and eat and drink what ever I want. I use my Peg for meds and vitamins.
Firefighter58 is offline   Reply With QuoteReply With Quote
Reply

Tags
meds, neurologist, peg, progression, vitamins, walker, wheelchair


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
reality check gooseberry Current Caregivers (CALS) 30 01-25-2016 02:33 PM
Getting a Van check list ? BILL W General Discussion About ALS/MND 8 06-22-2015 06:27 AM
Check out my PSA rjp0508 General Discussion About ALS/MND 0 06-10-2013 04:10 PM
Check this out dsiple ALS Research News 1 02-10-2009 07:52 AM
check it out katson General Discussion About ALS/MND 8 05-03-2005 03:39 AM


All times are GMT -5. The time now is 06:52 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016