amywiller
New member
- Joined
- Nov 12, 2007
- Messages
- 5
- Reason
- Loved one DX
- Country
- US
- State
- MI
- City
- St. Joseph
Hi everyone,
I stumbled across this website while searching for information and am I glad i found it!
I am the daughter of a pAL and my question is, my dad has been diagnosed and three of his sisters (my aunts) have already passed from the disease; yet one or two of them were tested for "the gene" and it didn't show. So how do we know if it's familial ALS or just a horrible statistical anomaly? My sibling and I are concerned about his and my risk but don't know who to ask.
I stumbled across this website while searching for information and am I glad i found it!
I am the daughter of a pAL and my question is, my dad has been diagnosed and three of his sisters (my aunts) have already passed from the disease; yet one or two of them were tested for "the gene" and it didn't show. So how do we know if it's familial ALS or just a horrible statistical anomaly? My sibling and I are concerned about his and my risk but don't know who to ask.